Harvard Catalyst Profiles

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Karen Alice Kuhlthau, PH.D.

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Research
The research activities and funding listed below are automatically derived from NIH ExPORTER and other sources, which might result in incorrect or missing items. Faculty can login to make corrections and additions.
  1. R01MH089466 (KUHLTHAU, KAREN A) Sep 30, 2009 - Aug 31, 2012
    NIH/NIMH
    Measuring quality adjusted life years in children with autism spectrum disorders
    Role: Principal Investigator
  2. R03HS013757 (KUHLTHAU, KAREN A) Aug 6, 2003 - Jul 31, 2005
    AHRQ
    Specialized therapies by children, correlates of use
    Role: Principal Investigator
  3. R03HD039862 (KUHLTAHU, KAREN A) Sep 24, 2001 - Aug 31, 2004
    NIH/NICHD
    Children with Chronic Health Conditions: Family Impact
    Role: Co-Principal Investigator

Bibliographic
Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
  1. Brown CC, Tilford JM, Payakachat N, Williams DK, Kuhlthau KA, Pyne JM, Hoefman RJ, Brouwer WBF. Measuring Health Spillover Effects in Caregivers of Children with Autism Spectrum Disorder: A Comparison of the EQ-5D-3L and SF-6D. Pharmacoeconomics. 2019 Mar 13. PMID: 30864066.
    Citations:    
  2. Kogan MD, Vladutiu CJ, Schieve LA, Ghandour RM, Blumberg SJ, Zablotsky B, Perrin JM, Shattuck P, Kuhlthau KA, Harwood RL, Lu MC. The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children. Pediatrics. 2018 Dec; 142(6). PMID: 30478241.
    Citations:    Fields:    
  3. Van Cleave J, Holifield C, Neumeyer AM, Perrin JM, Powers E, Van L, Kuhlthau KA. Expanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018 Dec; 48(12):4222-4230. PMID: 29982896.
    Citations:    Fields:    Translation:Humans
  4. Lindly OJ, Zuckerman KE, Kuhlthau KA. Healthcare access and services use among US children with autism spectrum disorder. Autism. 2018 Nov 29; 1362361318815237. PMID: 30497274.
    Citations:    
  5. Knutsen J, Crossman M, Perrin J, Shui A, Kuhlthau K. Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study. Autism. 2018 Jul 26; 1362361318786490. PMID: 30047281.
    Citations:    Fields:    
  6. Mueller EL, Park ER, Kirchhoff AC, Kuhlthau K, Nathan PC, Perez GK, Rabin J, Hutchinson R, Oeffinger KC, Robison LL, Armstrong GT, Leisenring WM, Donelan K. Insurance, chronic health conditions, and utilization of primary and specialty outpatient services: a Childhood Cancer Survivor Study report. J Cancer Surviv. 2018 Oct; 12(5):639-646. PMID: 29943170.
    Citations:    Fields:    
  7. Chien AT, Toomey SL, Kuo DZ, Van Cleave J, Houtrow AJ, Okumura MJ, Westfall MY, Petty CR, Quinn JA, Kuhlthau KA, Schuster MA. Care Quality and Spending Among Commercially Insured Children With Disabilities. Acad Pediatr. 2018 Jun 19. PMID: 29932986.
    Citations:    Fields:    
  8. Kamran SC, Goldberg SI, Kuhlthau KA, Lawell MP, Weyman EA, Gallotto SL, Hess CB, Huang MS, Friedmann AM, Abrams AN, MacDonald SM, Pulsifer MB, Tarbell NJ, Ebb DH, Yock TI. Quality of life in patients with proton-treated pediatric medulloblastoma: Results of a prospective assessment with 5-year follow-up. Cancer. 2018 Aug; 124(16):3390-3400. PMID: 29905942.
    Citations:    Fields:    
  9. Nipp RD, Shui AM, Perez GK, Kirchhoff AC, Peppercorn JM, Moy B, Kuhlthau K, Park ER. Patterns in Health Care Access and Affordability Among Cancer Survivors During Implementation of the Affordable Care Act. JAMA Oncol. 2018 Jun 01; 4(6):791-797. PMID: 29596618.
    Citations:    Fields:    
  10. Kirchhoff AC, Nipp R, Warner EL, Kuhlthau K, Leisenring WM, Donelan K, Rabin J, Perez GK, Oeffinger KC, Nathan PC, Robison LL, Armstrong GT, Park ER. "Job Lock" Among Long-term Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. JAMA Oncol. 2018 May 01; 4(5):707-711. PMID: 29049517.
    Citations: 1     Fields:    
  11. Perez GK, Kirchhoff AC, Recklitis C, Krull KR, Kuhlthau KA, Nathan PC, Rabin J, Armstrong GT, Leisenring W, Robison LL, Park ER. Mental health insurance access and utilization among childhood cancer survivors: a report from the childhood cancer survivor study. J Cancer Surviv. 2018 Aug; 12(4):528-536. PMID: 29658062.
    Citations:    Fields:    
  12. Kuhlthau KA, Bailey LC, Baer BL, Coury DL, Law JK, Murray DS, Razzaghi H, Forrest CB, Lipkin PH. Large Databases for Pediatric Research on Children with Autism Spectrum Disorder. J Dev Behav Pediatr. 2018 Feb/Mar; 39(2):168-176. PMID: 29239865.
    Citations:    Fields:    
  13. Fiechtner L, Perkins M, Biggs V, Langhans N, Sharifi M, O'Connor G, Price S, Locascio J, Kuhlthau K, Kwass JA, Nelson C, Land T, Longjohn M, Lawson V, Hohman K, Taveras EM. Rationale and design of the Clinic and Community Approaches to Healthy Weight Randomized Trial. Contemp Clin Trials. 2018 Apr; 67:16-22. PMID: 29330083.
    Citations:    Fields:    
  14. Iezzoni LI, Wint AJ, Boudreau AA, Blauwet CA, Kuhlthau KA. Views of teenage children about the effects of a Parent's mobility disability. Disabil Health J. 2018 07; 11(3):405-411. PMID: 29331657.
    Citations:    Fields:    Translation:Humans
  15. Ventura LM, Grieco JA, Evans CL, Kuhlthau KA, MacDonald SM, Tarbell NJ, Yock TI, Pulsifer MB. Executive functioning, academic skills, and quality of life in pediatric patients with brain tumors post-proton radiation therapy. J Neurooncol. 2018 Mar; 137(1):119-126. PMID: 29214403.
    Citations: 1     Fields:    
  16. Park ER, Kirchhoff AC, Nipp RD, Donelan K, Leisenring WM, Armstrong GT, Kuhlthau KA. Assessing Health Insurance Coverage Characteristics and Impact on Health Care Cost, Worry, and Access: A Report From the Childhood Cancer Survivor Study. JAMA Intern Med. 2017 12 01; 177(12):1855-1858. PMID: 28973059.
    Citations: 1     Fields:    Translation:Humans
  17. Magnusson DM, Minkovitz CS, Kuhlthau KA, Caballero TM, Mistry KB. Beliefs Regarding Development and Early Intervention Among Low-Income African American and Hispanic Mothers. Pediatrics. 2017 Nov; 140(5). PMID: 29038343.
    Citations:    Fields:    Translation:Humans
  18. Payakachat N, Tilford JM, Kuhlthau KA. Parent-Reported Use of Interventions by Toddlers and Preschoolers With Autism Spectrum Disorder. Psychiatr Serv. 2018 Feb 01; 69(2):186-194. PMID: 29032701.
    Citations:    Fields:    
  19. Culler CS, Kotelchuck M, Declercq E, Kuhlthau K, Jones K, Yoder KM. A School-Based Dental Program Evaluation: Comparison to the Massachusetts Statewide Survey. J Sch Health. 2017 10; 87(10):784-789. PMID: 28876475.
    Citations:    Fields:    Translation:Humans
  20. Nipp RD, Kirchhoff AC, Fair D, Rabin J, Hyland KA, Kuhlthau K, Perez GK, Robison LL, Armstrong GT, Nathan PC, Oeffinger KC, Leisenring WM, Park ER. Financial Burden in Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. J Clin Oncol. 2017 Oct 20; 35(30):3474-3481. PMID: 28817372.
    Citations: 4     Fields:    Translation:Humans
  21. Kuhlthau KA, McDonnell E, Coury DL, Payakachat N, Macklin E. Associations of quality of life with health-related characteristics among children with autism. Autism. 2018 Oct; 22(7):804-813. PMID: 28691502.
    Citations: 1     Fields:    
  22. Zuckerman KE, Friedman NDB, Chavez AE, Shui AM, Kuhlthau KA. Parent-Reported Severity and Health/Educational Services Use Among US Children with Autism: Results from a National Survey. J Dev Behav Pediatr. 2017 May; 38(4):260-268. PMID: 28410256.
    Citations: 2     Fields:    Translation:Humans
  23. Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Okumura MJ, Kuo DZ, Houtrow AJ, Van Cleave J, Landrum MB, Jang J, Janmey I, Furdyna MJ, Schuster MA. Quality of Primary Care for Children With Disabilities Enrolled in Medicaid. Acad Pediatr. 2017 May - Jun; 17(4):443-449. PMID: 28286057.
    Citations:    Fields:    Translation:Humans
  24. Mouw KW, Yeap BY, Caruso P, Fay A, Misra M, Sethi RV, MacDonald SM, Chen YL, Tarbell NJ, Yock TI, Freitag SK, Munzenrider JE, Grabowski E, Katz M, Kuhlthau K, DeCastro D, Heidary G, Ciralsky J, Mukai S, Shih HA. Analysis of patient outcomes following proton radiation therapy for retinoblastoma. Adv Radiat Oncol. 2017 Jan-Mar; 2(1):44-52. PMID: 28607957.
    Citations:    
  25. Clark ME, Cummings BM, Kuhlthau K, Frassica N, Noviski N. Impact of Pediatric Intensive Care Unit Admission on Family Financial Status and Productivity: A Pilot Study. J Intensive Care Med. 2017 Jan 01; 885066617723278. PMID: 28797189.
    Citations:    Fields:    
  26. Kuhlthau KA, Nipp RD, Shui A, Srichankij S, Kirchhoff AC, Galbraith AA, Park ER. Health insurance coverage, care accessibility and affordability for adult survivors of childhood cancer: a cross-sectional study of a nationally representative database. J Cancer Surviv. 2016 12; 10(6):964-971. PMID: 27072683.
    Citations: 1     Fields:    Translation:Humans
  27. Kuhlthau KA, Delahaye J, Erickson-Warfield M, Shui A, Crossman M, van der Weerd E. Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers. Pediatrics. 2016 02; 137 Suppl 2:S158-66. PMID: 26908471.
    Citations:    Fields:    Translation:Humans
  28. Perrin JM, Coury DL, Klatka K, Winklosky B, Wolfe A, Murray D, Kuhlthau KA. The Autism Intervention Research Network on Physical Health and the Autism Speaks Autism Treatment Network. Pediatrics. 2016 02; 137 Suppl 2:S67-71. PMID: 26908479.
    Citations:    Fields:    Translation:Humans
  29. Broder-Fingert S, Shui A, Ferrone C, Iannuzzi D, Cheng ER, Giauque A, Connors S, McDougle CJ, Donelan K, Neumeyer A, Kuhlthau K. A Pilot Study of Autism-Specific Care Plans During Hospital Admission. Pediatrics. 2016 02; 137 Suppl 2:S196-204. PMID: 26908475.
    Citations: 1     Fields:    Translation:Humans
  30. Iezzoni LI, Wint AJ, Kuhlthau KA, Boudreau AA. Adults' recollections and perceptions of childhood caregiving to a parent with significant physical disability. Disabil Health J. 2016 Apr; 9(2):208-17. PMID: 26712460; PMCID: PMC4808597.
    Citations: 1     Fields:    Translation:Humans
  31. Tilford JM, Payakachat N, Kuhlthau KA, Pyne JM, Kovacs E, Bellando J, Williams DK, Brouwer WB, Frye RE. Treatment for Sleep Problems in Children with Autism and Caregiver Spillover Effects. J Autism Dev Disord. 2015 Nov; 45(11):3613-23. PMID: 26126749; PMCID: PMC4609586.
    Citations: 2     Fields:    Translation:Humans
  32. Kirchhoff AC, Fair DB, Kuhlthau K, Hyland K, Perez GK, Armstrong GT, Nathan PC, Oeffinger KC, Leisenring WM, Park ER. Financial burden among survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. J Clin Oncol. 2015 Oct 10; 33(29_suppl):233. PMID: 28148105.
    Citations:    
  33. Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Houtrow AJ, Kuo DZ, Okumura MJ, Van Cleave JM, Johnson CK, Mahoney LL, Martin J, Landrum MB, Schuster MA. Development of the Children With Disabilities Algorithm. Pediatrics. 2015 Oct; 136(4):e871-8. PMID: 26416938.
    Citations:    Fields:    Translation:Humans
  34. Gnanasekaran S, Choueiri R, Neumeyer A, Ajari O, Shui A, Kuhlthau K. Impact of employee benefits on families with children with autism spectrum disorders. Autism. 2016 07; 20(5):616-22. PMID: 26341992.
    Citations:    Fields:    Translation:Humans
  35. Warfield ME, Crossman MK, Delahaye J, Der Weerd E, Kuhlthau KA. Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD). J Autism Dev Disord. 2015 Jul; 45(7):2209-17. PMID: 25724445.
    Citations:    
  36. Pulcini CD, Perrin JM, Houtrow AJ, Sargent J, Shui A, Kuhlthau K. Examining Trends and Coexisting Conditions Among Children Qualifying for SSI Under ADHD, ASD, and ID. Acad Pediatr. 2015 Jul-Aug; 15(4):439-43. PMID: 26142070.
    Citations:    Fields:    Translation:Humans
  37. Ronis SD, Baldwin CD, Blumkin A, Kuhlthau K, Szilagyi PG. Patient-Centered Medical Home and Family Burden in Attention-Deficit Hyperactivity Disorder. J Dev Behav Pediatr. 2015 Jul-Aug; 36(6):417-25. PMID: 26035140.
    Citations: 2     Fields:    Translation:Humans
  38. Pulsifer MB, Sethi RV, Kuhlthau KA, MacDonald SM, Tarbell NJ, Yock TI. Early Cognitive Outcomes Following Proton Radiation in Pediatric Patients With Brain and Central Nervous System Tumors. Int J Radiat Oncol Biol Phys. 2015 Oct 01; 93(2):400-7. PMID: 26254679; PMCID: PMC4955513.
    Citations: 16     Fields:    Translation:Humans
  39. Van Cleave J, Boudreau AA, McAllister J, Cooley WC, Maxwell A, Kuhlthau K. Care coordination over time in medical homes for children with special health care needs. Pediatrics. 2015 Jun; 135(6):1018-26. PMID: 25963012.
    Citations: 1     Fields:    Translation:Humans
  40. Kirchhoff AC, Parsons HM, Kuhlthau KA, Leisenring W, Donelan K, Warner EL, Armstrong GT, Robison LL, Oeffinger KC, Park ER. Supplemental security income and social security disability insurance coverage among long-term childhood cancer survivors. J Natl Cancer Inst. 2015 Jun; 107(6):djv057. PMID: 25770148; PMCID: PMC4650970.
    Citations: 6     Fields:    Translation:Humans
  41. Park ER, Kirchhoff AC, Perez GK, Leisenring W, Weissman JS, Donelan K, Mertens AC, Reschovsky JD, Armstrong GT, Robison LL, Franklin M, Hyland KA, Diller LR, Recklitis CJ, Kuhlthau KA. Childhood Cancer Survivor Study participants' perceptions and understanding of the Affordable Care Act. J Clin Oncol. 2015 Mar 01; 33(7):764-72. PMID: 25646189; PMCID: PMC4334780.
    Citations: 9     Fields:    Translation:Humans
  42. Kuhlthau K, Luff D, Delahaye J, Wong A, Yock T, Huang M, Park ER. Health-Related Quality of Life of Adolescent and Young Adult Survivors of Central Nervous System Tumors: Identifying Domains From a Survivor Perspective. J Pediatr Oncol Nurs. 2015 Nov-Dec; 32(6):385-93. PMID: 25616371.
    Citations: 1     Fields:    Translation:Humans
  43. Yock TI, Bhat S, Szymonifka J, Yeap BY, Delahaye J, Donaldson SS, MacDonald SM, Pulsifer MB, Hill KS, DeLaney TF, Ebb D, Huang M, Tarbell NJ, Fisher PG, Kuhlthau KA. Quality of life outcomes in proton and photon treated pediatric brain tumor survivors. Radiother Oncol. 2014 Oct; 113(1):89-94. PMID: 25304720; PMCID: PMC4288853.
    Citations: 11     Fields:    Translation:Humans
  44. Payakachat N, Tilford JM, Kuhlthau KA, van Exel NJ, Kovacs E, Bellando J, Pyne JM, Brouwer WB. Predicting health utilities for children with autism spectrum disorders. Autism Res. 2014 Dec; 7(6):649-63. PMID: 25255789; PMCID: PMC4270935.
    Citations: 9     Fields:    Translation:Humans
  45. Kuhlthau KA, Mistry KB, Forrest CB, Dougherty D. Advancing the science of measurement in pediatric quality of care. Acad Pediatr. 2014 Sep-Oct; 14(5 Suppl):S1-3. PMID: 25169448.
    Citations:    Fields:    Translation:Humans
  46. Hoefman R, Payakachat N, van Exel J, Kuhlthau K, Kovacs E, Pyne J, Tilford JM. Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol. J Autism Dev Disord. 2014 Aug; 44(8):1933-45. PMID: 24577786; PMCID: PMC4167350.
    Citations: 6     Fields:    Translation:Humans
  47. Zuckerman KE, Lindly OJ, Bethell CD, Kuhlthau K. Family impacts among children with autism spectrum disorder: the role of health care quality. Acad Pediatr. 2014 Jul-Aug; 14(4):398-407. PMID: 24976352; PMCID: PMC4076703.
    Citations: 6     Fields:    Translation:Humans
  48. Boudreau AA, Perrin JM, Goodman E, Kurowski D, Cooley WC, Kuhlthau K. Care coordination and unmet specialty care among children with special health care needs. Pediatrics. 2014 Jun; 133(6):1046-53. PMID: 24864172.
    Citations: 7     Fields:    Translation:Humans
  49. Lavelle TA, Weinstein MC, Newhouse JP, Munir K, Kuhlthau KA, Prosser LA. Economic burden of childhood autism spectrum disorders. Pediatrics. 2014 Mar; 133(3):e520-9. PMID: 24515505.
    Citations: 34     Fields:    Translation:Humans
  50. Kuhlthau KA, Warfield ME, Hurson J, Delahaye J, Crossman MK. Pediatric provider's perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism. 2015 Apr; 19(3):262-71. PMID: 24497626.
    Citations: 3     Fields:    Translation:Humans
  51. Isong I, Dantas L, Gerard M, Kuhlthau K. Oral Health Disparities and Unmet Dental Needs among Preschool Children in Chelsea, MA: Exploring Mechanisms, Defining Solutions. J Oral Hyg Health. 2014; 2. PMID: 25614878.
    Citations: 4     
  52. McAllister JW, Cooley WC, Van Cleave J, Boudreau AA, Kuhlthau K. Medical home transformation in pediatric primary care--what drives change? Ann Fam Med. 2013 May-Jun; 11 Suppl 1:S90-8. PMID: 23690392; PMCID: PMC3707252.
    Citations: 6     Fields:    Translation:Humans
  53. Pulcini CD, Kotelchuck M, Kuhlthau KA, Nozzolillo AA, Perrin JM. Potential savings from redetermining disability among children receiving supplemental security income benefits. Acad Pediatr. 2012 Nov-Dec; 12(6):489-94. PMID: 22989732; PMCID: PMC3501557.
    Citations:    Fields:    Translation:Humans
  54. Arauz Boudreau AD, Van Cleave JM, Gnanasekaran SK, Kurowski DS, Kuhlthau KA. The medical home: relationships with family functioning for children with and without special health care needs. Acad Pediatr. 2012 Sep-Oct; 12(5):391-8. PMID: 22884797.
    Citations: 2     Fields:    Translation:Humans
  55. Tilford JM, Payakachat N, Kovacs E, Pyne JM, Brouwer W, Nick TG, Bellando J, Kuhlthau KA. Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: a comparison of generic instruments. Pharmacoeconomics. 2012 Aug 01; 30(8):661-79. PMID: 22788258.
    Citations: 15     Fields:    Translation:Humans
  56. Payakachat N, Tilford JM, Kovacs E, Kuhlthau K. Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications. Expert Rev Pharmacoecon Outcomes Res. 2012 Aug; 12(4):485-503. PMID: 22971035; PMCID: PMC3502071.
    Citations: 10     Fields:    Translation:Humans
  57. Kirchhoff AC, Kuhlthau K, Pajolek H, Leisenring W, Armstrong GT, Robison LL, Park ER. Employer-sponsored health insurance coverage limitations: results from the Childhood Cancer Survivor Study. Support Care Cancer. 2013 Feb; 21(2):377-83. PMID: 22717916; PMCID: PMC3887442.
    Citations: 10     Fields:    Translation:Humans
  58. Park ER, Kirchhoff AC, Zallen JP, Weissman JS, Pajolek H, Mertens AC, Armstrong GT, Robison LL, Donelan K, Recklitis CJ, Diller LR, Kuhlthau KA. Childhood Cancer Survivor Study participants' perceptions and knowledge of health insurance coverage: implications for the Affordable Care Act. J Cancer Surviv. 2012 Sep; 6(3):251-9. PMID: 22592507; PMCID: PMC4706983.
    Citations: 15     Fields:    Translation:Humans
  59. Van Cleave J, Kuhlthau KA, Bloom S, Newacheck PW, Nozzolillo AA, Homer CJ, Perrin JM. Interventions to improve screening and follow-up in primary care: a systematic review of the evidence. Acad Pediatr. 2012 Jul-Aug; 12(4):269-82. PMID: 22575809.
    Citations: 8     Fields:    Translation:HumansPHPublic Health
  60. Kuhlthau KA, Pulsifer MB, Yeap BY, Rivera Morales D, Delahaye J, Hill KS, Ebb D, Abrams AN, Macdonald SM, Tarbell NJ, Yock TI. Prospective study of health-related quality of life for children with brain tumors treated with proton radiotherapy. J Clin Oncol. 2012 Jun 10; 30(17):2079-86. PMID: 22565004; PMCID: PMC3397695.
    Citations: 23     Fields:    Translation:Humans
  61. Houtrow AJ, Yock TI, Delahaye J, Kuhlthau K. The family impacts of proton radiation therapy for children with brain tumors. J Pediatr Oncol Nurs. 2012 May-Jun; 29(3):171-9. PMID: 22647729; PMCID: PMC3587352.
    Citations: 3     Fields:    Translation:Humans
  62. Bloom SR, Kuhlthau K, Van Cleave J, Knapp AA, Newacheck P, Perrin JM. Health care transition for youth with special health care needs. J Adolesc Health. 2012 Sep; 51(3):213-9. PMID: 22921130.
    Citations: 13     Fields:    Translation:Humans
  63. Kuo DZ, Houtrow AJ, Arango P, Kuhlthau KA, Simmons JM, Neff JM. Family-centered care: current applications and future directions in pediatric health care. Matern Child Health J. 2012 Feb; 16(2):297-305. PMID: 21318293; PMCID: PMC3262132.
    Citations: 33     Fields:    Translation:Humans
  64. Katz ML, Laffel LM, Perrin JM, Kuhlthau K. Impact of type 1 diabetes mellitus on the family is reduced with the medical home, care coordination, and family-centered care. J Pediatr. 2012 May; 160(5):861-7. PMID: 22133424; PMCID: PMC3328639.
    Citations: 16     Fields:    Translation:Humans
  65. Guzman MP, Jellinek M, George M, Hartley M, Squicciarini AM, Canenguez KM, Kuhlthau KA, Yucel R, White GW, Guzman J, Murphy JM. Mental health matters in elementary school: first-grade screening predicts fourth grade achievement test scores. Eur Child Adolesc Psychiatry. 2011 Aug; 20(8):401-11. PMID: 21647553.
    Citations: 5     Fields:    Translation:HumansPHPublic Health
  66. Kuhlthau KA. Measures of availability of health care services for children. Acad Pediatr. 2011 May-Jun; 11(3 Suppl):S42-8. PMID: 21570016.
    Citations: 1     Fields:    Translation:Humans
  67. Kuhlthau K, Jellinek M, White G, Vancleave J, Simons J, Murphy M. Increases in behavioral health screening in pediatric care for Massachusetts Medicaid patients. Arch Pediatr Adolesc Med. 2011 Jul; 165(7):660-4. PMID: 21383254; PMCID: PMC4727531.
    Citations: 15     Fields:    Translation:HumansPHPublic Health
  68. Kuhlthau KA, Bloom S, Van Cleave J, Knapp AA, Romm D, Klatka K, Homer CJ, Newacheck PW, Perrin JM. Evidence for family-centered care for children with special health care needs: a systematic review. Acad Pediatr. 2011 Mar-Apr; 11(2):136-43. PMID: 21396616.
    Citations: 23     Fields:    Translation:Humans
  69. Szilagyi PG, Kuhlthau KA. Children with special health care needs: a celebration of success! Acad Pediatr. 2011 Mar-Apr; 11(2):94-5. PMID: 21396613.
    Citations:    Fields:    Translation:Humans
  70. Lipstein EA, Nabi E, Perrin JM, Luff D, Browning MF, Kuhlthau KA. Parents' decision-making in newborn screening: opinions, choices, and information needs. Pediatrics. 2010 Oct; 126(4):696-704. PMID: 20837593.
    Citations: 6     Fields:    Translation:HumansPHPublic Health
  71. Kuhlthau K, Orlich F, Hall TA, Sikora D, Kovacs EA, Delahaye J, Clemons TE. Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network. J Autism Dev Disord. 2010 Jun; 40(6):721-9. PMID: 20033762.
    Citations: 25     Fields:    Translation:Humans
  72. Oreskovic NM, Kuhlthau KA, Laraque D, Serwint JR, Schuster MA. Health care reform for children: views from the Academic Pediatric Association. Acad Pediatr. 2010 May-Jun; 10(3):153-4. PMID: 20452563.
    Citations:    Fields:    Translation:Humans
  73. Arauz Boudreau AD, Fluet CF, Reuland CP, Delahaye J, Perrin JM, Kuhlthau K. Associations of providers' language and cultural skills with Latino parents' perceptions of well-child care. Acad Pediatr. 2010 May-Jun; 10(3):172-8. PMID: 20347415.
    Citations: 8     Fields:    Translation:Humans
  74. Isong IA, Zuckerman KE, Rao SR, Kuhlthau KA, Winickoff JP, Perrin JM. Association between parents' and children's use of oral health services. Pediatrics. 2010 Mar; 125(3):502-8. PMID: 20123775.
    Citations: 12     Fields:    Translation:Humans
  75. Witt WP, Kahn R, Fortuna L, Winickoff J, Kuhlthau K, Pirraglia PA, Ferris T. Psychological distress as a barrier to preventive healthcare among U.S. women. J Prim Prev. 2009 Sep; 30(5):531-47. PMID: 19690962.
    Citations: 7     Fields:    Translation:Humans
  76. Cooley WC, McAllister JW, Sherrieb K, Kuhlthau K. Improved outcomes associated with medical home implementation in pediatric primary care. Pediatrics. 2009 Jul; 124(1):358-64. PMID: 19564320.
    Citations: 49     Fields:    Translation:Humans
  77. Oreskovic NM, Winickoff JP, Kuhlthau KA, Romm D, Perrin JM. Obesity and the built environment among Massachusetts children. Clin Pediatr (Phila). 2009 Nov; 48(9):904-12. PMID: 19487763.
    Citations: 21     Fields:    Translation:Humans
  78. Oreskovic NM, Kuhlthau KA, Romm D, Perrin JM. Built environment and weight disparities among children in high- and low-income towns. Acad Pediatr. 2009 Sep-Oct; 9(5):315-21. PMID: 19477705.
    Citations: 15     Fields:    Translation:Humans
  79. Newacheck PW, Houtrow AJ, Romm DL, Kuhlthau KA, Bloom SR, Van Cleave JM, Perrin JM. The future of health insurance for children with special health care needs. Pediatrics. 2009 May; 123(5):e940-7. PMID: 19403486.
    Citations: 4     Fields:    Translation:Humans
  80. Wexler T, Gunnell L, Omer Z, Kuhlthau K, Beauregard C, Graham G, Utz AL, Biller B, Nachtigall L, Loeffler J, Swearingen B, Klibanski A, Miller KK. Growth hormone deficiency is associated with decreased quality of life in patients with prior acromegaly. J Clin Endocrinol Metab. 2009 Jul; 94(7):2471-7. PMID: 19366847; PMCID: PMC2708960.
    Citations: 18     Fields:    Translation:Humans
  81. Zuckerman KE, Boudreau AA, Lipstein EA, Kuhlthau KA, Perrin JM. Household language, parent developmental concerns, and child risk for developmental disorder. Acad Pediatr. 2009 Mar-Apr; 9(2):97-105. PMID: 19329100.
    Citations: 7     Fields:    Translation:Humans
  82. Lipstein EA, Perrin JM, Kuhlthau KA. School absenteeism, health status, and health care utilization among children with asthma: associations with parental chronic disease. Pediatrics. 2009 Jan; 123(1):e60-6. PMID: 19117848.
    Citations: 4     Fields:    Translation:Humans
  83. Kuhlthau K, Kahn R, Hill KS, Gnanasekaran S, Ettner SL. The well-being of parental caregivers of children with activity limitations. Matern Child Health J. 2010 Mar; 14(2):155-63. PMID: 19034635.
    Citations: 21     Fields:    Translation:Humans
  84. Gnanasekaran SK, Boudreau AA, Soobader MJ, Yucel R, Hill K, Kuhlthau K. State policy environment and delayed or forgone care among children with special health care needs. Matern Child Health J. 2008 Nov; 12(6):739-46. PMID: 17975719.
    Citations: 4     Fields:    Translation:Humans
  85. Homer CJ, Klatka K, Romm D, Kuhlthau K, Bloom S, Newacheck P, Van Cleave J, Perrin JM. A review of the evidence for the medical home for children with special health care needs. Pediatrics. 2008 Oct; 122(4):e922-37. PMID: 18829788.
    Citations: 67     Fields:    Translation:Humans
  86. Toomey SL, Finkelstein J, Kuhlthau K. Does connection to primary care matter for children with attention-deficit/hyperactivity disorder? Pediatrics. 2008 Aug; 122(2):368-74. PMID: 18676555.
    Citations: 5     Fields:    Translation:Humans
  87. Tang MH, Hill KS, Boudreau AA, Yucel RM, Perrin JM, Kuhlthau KA. Medicaid managed care and the unmet need for mental health care among children with special health care needs. Health Serv Res. 2008 Jun; 43(3):882-900. PMID: 18454773; PMCID: PMC2442244.
    Citations: 9     Fields:    Translation:Humans
  88. Kuhlthau K, Hill K, Fluet C, Meara E, Yucel RM. Correlates of therapy use and expenditures in children in the United States. Dev Neurorehabil. 2008 Apr-Jun; 11(2):115-23. PMID: 17952754.
    Citations: 1     Fields:    Translation:Humans
  89. Perrin JM, Kuhlthau K, Chughtai A, Romm D, Kirschner BS, Ferry GD, Cohen SA, Gold BD, Heyman MB, Baldassano RN, Winter HS. Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics. J Pediatr Gastroenterol Nutr. 2008 Feb; 46(2):164-71. PMID: 18223375; PMCID: PMC3065353.
    Citations: 15     Fields:    Translation:Humans
  90. Perrin JM, Romm D, Bloom SR, Homer CJ, Kuhlthau KA, Cooley C, Duncan P, Roberts R, Sloyer P, Wells N, Newacheck P. A family-centered, community-based system of services for children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007 Oct; 161(10):933-6. PMID: 17909135.
    Citations: 8     Fields:    Translation:Humans
  91. Hill KS, Freeman LC, Yucel RM, Kuhlthau KA. Unmet need among children with special health care needs in Massachusetts. Matern Child Health J. 2008 Sep; 12(5):650-61. PMID: 17899342.
    Citations: 6     Fields:    Translation:Humans
  92. Perrin JM, Fluet CF, Honberg L, Anderson B, Wells N, Epstein S, Allen D, Tobias C, Kuhlthau KA. Benefits for employees with children with special needs: findings from the collaborative employee benefit study. Health Aff (Millwood). 2007 Jul-Aug; 26(4):1096-103. PMID: 17630452.
    Citations: 4     Fields:    Translation:Humans
  93. Witt WP, Fortuna L, Wu E, Kahn RS, Winickoff JP, Pirraglia PA, Ferris TG, Kuhlthau K. Children's use of motor vehicle restraints: maternal psychological distress, maternal motor vehicle restraint practices, and sociodemographics. Ambul Pediatr. 2006 May-Jun; 6(3):145-51. PMID: 16713932.
    Citations: 5     Fields:    Translation:Humans
  94. Ferris TG, Kuhlthau K, Ausiello J, Perrin J, Kahn R. Are minority children the last to benefit from a new technology? Technology diffusion and inhaled corticosteriods for asthma. Med Care. 2006 Jan; 44(1):81-6. PMID: 16365616.
    Citations: 17     Fields:    Translation:Humans
  95. Kuhlthau K, Ferris TG, Davis RB, Perrin JM, Iezzoni LI. Pharmacy-and diagnosis-based risk adjustment for children with Medicaid. Med Care. 2005 Nov; 43(11):1155-9. PMID: 16224310.
    Citations: 3     Fields:    Translation:Humans
  96. Blumenthal D, Weissman JS, Wachterman M, Weil E, Stafford RS, Perrin JM, Ferris TG, Kuhlthau K, Kaushal R, Iezzoni LI. The who, what, and why of risk adjustment: a technology on the cusp of adoption. J Health Polit Policy Law. 2005 Jun; 30(3):453-73. PMID: 16089112.
    Citations: 6     Fields:    
  97. Kuhlthau K, Hill KS, Yucel R, Perrin JM. Financial burden for families of children with special health care needs. Matern Child Health J. 2005 Jun; 9(2):207-18. PMID: 15965627.
    Citations: 33     Fields:    Translation:Humans
  98. Perrin JM, Fluet C, Kuhlthau KA, Anderson B, Wells N, Epstein S, Allen D, Tobias C. Benefits for employees with children with ADHD: findings from the Collaborative Employee Benefit Study. J Dev Behav Pediatr. 2005 Feb; 26(1):3-8. PMID: 15718875.
    Citations:    Fields:    Translation:Humans
  99. Kuhlthau K, Nyman RM, Ferris TG, Beal AC, Perrin JM. Correlates of use of specialty care. Pediatrics. 2004 Mar; 113(3 Pt 1):e249-55. PMID: 14993584.
    Citations: 23     Fields:    Translation:Humans
  100. Kuhlthau K, Ferris TG, Iezzoni LI. Risk adjustment for pediatric quality indicators. Pediatrics. 2004 Jan; 113(1 Pt 2):210-6. PMID: 14702503.
    Citations: 2     Fields:    Translation:Humans
  101. Beal AC, Kuhlthau K, Perrin JM. Breastfeeding advice given to African American and white women by physicians and WIC counselors. Public Health Rep. 2003 Jul-Aug; 118(4):368-76. PMID: 12815087; PMCID: PMC1497560.
    Citations: 11     Fields:    Translation:Humans
  102. Perrin JM, Kuhlthau KA, Gortmaker SL, Beal AC, Ferris TG. Generalist and subspecialist care for children with chronic conditions. Ambul Pediatr. 2002 Nov-Dec; 2(6):462-9. PMID: 12437393.
    Citations: 11     Fields:    Translation:Humans
  103. Kuhlthau KA, Beal AC, Ferris TG, Perrin JM. Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center. Ambul Pediatr. 2002 Jan-Feb; 2(1):58-62. PMID: 11888439.
    Citations: 14     Fields:    Translation:HumansPHPublic Health
  104. Kuhlthau KA, Perrin JM. Child health status and parental employment. Arch Pediatr Adolesc Med. 2001 Dec; 155(12):1346-50. PMID: 11732954.
    Citations: 25     Fields:    Translation:Humans
  105. Kuhlthau K, Ferris TG, Beal AC, Gortmaker SL, Perrin JM. Who cares for medicaid-enrolled children with chronic conditions? Pediatrics. 2001 Oct; 108(4):906-12. PMID: 11581443.
    Citations: 23     Fields:    Translation:Humans
  106. Ferris TG, Kuhlthau K. Why should pediatricians be concerned about risk adjustment? Ambul Pediatr. 2001 Jul-Aug; 1(4):225-6. PMID: 11888405.
    Citations:    Fields:    Translation:Humans
  107. Cooper WO, Kuhlthau K. Evaluating medicaid managed care programs for children. Ambul Pediatr. 2001 Mar-Apr; 1(2):112-6. PMID: 11888383.
    Citations: 3     Fields:    Translation:Humans
  108. Ettner SL, Kuhlthau K, McLaughlin TJ, Perrin JM, Gortmaker SL. Impact of expanding SSI on Medicaid expenditures of disabled children. Health Care Financ Rev. 2000; 21(3):185-201. PMID: 11481755; PMCID: PMC4194672.
    Citations: 3     Fields:    Translation:Humans
  109. Thyen U, Kuhlthau K, Perrin JM. Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics. 1999 Jun; 103(6 Pt 1):1235-42. PMID: 10353935.
    Citations: 32     Fields:    Translation:Humans
  110. Perrin JM, Kuhlthau K, McLaughlin TJ, Ettner SL, Gortmaker SL. Changing patterns of conditions among children receiving Supplemental Security Income disability benefits. Arch Pediatr Adolesc Med. 1999 Jan; 153(1):80-4. PMID: 9895004.
    Citations: 13     Fields:    Translation:Humans
  111. Kuhlthau K, Perrin JM, Ettner SL, McLaughlin TJ, Gortmaker SL. High-expenditure children with Supplemental Security Income. Pediatrics. 1998 Sep; 102(3 Pt 1):610-5. PMID: 9738184.
    Citations: 6     Fields:    Translation:Humans
  112. Kuhlthau K, Walker DK, Perrin JM, Bauman L, Gortmaker SL, Newacheck PW, Stein RE. Assessing managed care for children with chronic conditions. Health Aff (Millwood). 1998 Jul-Aug; 17(4):42-52. PMID: 9691549.
    Citations: 5     Fields:    Translation:Humans
  113. Perrin JM, Ettner SL, McLaughlin TJ, Gortmaker SL, Bloom SR, Kuhlthau K. State variations in supplemental security income enrollment for children and adolescents. Am J Public Health. 1998 Jun; 88(6):928-31. PMID: 9618622; PMCID: PMC1508231.
    Citations: 7     Fields:    Translation:Humans
  114. Perrin JM, Kuhlthau K, Ettner SL, McLaughlin TJ, Gortmaker SL. Previous Medicaid Status of Children Newly Enrolled in Supplemental Security Income. Health Care Financ Rev. 1998; 19(4):117-127. PMID: 25372891.
    Citations: 3     Fields:    
  115. Perrin JM, Kuhlthau K, Walker DK, Stein RE, Newacheck PW, Gortmaker SL. Monitoring health care for children with chronic conditions in a managed care environment. Matern Child Health J. 1997 Mar; 1(1):15-23. PMID: 10728222.
    Citations: 7     Fields:    Translation:Humans
  116. Newacheck PW, Stein RE, Walker DK, Gortmaker SL, Kuhlthau K, Perrin JM. Monitoring and evaluating managed care for children with chronic illnesses and disabilities. Pediatrics. 1996 Nov; 98(5):952-8. PMID: 8909492.
    Citations: 9     Fields:    Translation:Humans
  117. Howland J, Mangione TW, Kuhlthau K, Bell N, Heeren T, Lee M, Levine S. Work-site variation in managerial drinking. Addiction. 1996 Jul; 91(7):1007-17. PMID: 8688815.
    Citations: 2     Fields:    Translation:Humans
  118. Mason KO, Kuhlthau K. The perceived impact of child care costs on women's labor supply and fertility. Demography. 1992 Nov; 29(4):523-43. PMID: 1483540.
    Citations: 7     Fields:    Translation:Humans
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Funded by the NIH/NCATS Clinical and Translational Science Award (CTSA) program, grant number UL1TR001102, and through institutional support from Harvard University, Harvard Medical School, Harvard T.H. Chan School of Public Health, Beth Israel Deaconess Medical Center, Boston Children's Hospital, Brigham and Women's Hospital, Massachusetts General Hospital and the Dana Farber Cancer Institute.