Harvard Catalyst Profiles

Contact, publication, and social network information about Harvard faculty and fellows.

Jennifer Williams Mack, M.D.

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Research
research activities and funding
The research activities and funding listed below are automatically derived from NIH ExPORTER and other sources, which might result in incorrect or missing items. Faculty can login to make corrections and additions.
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  1. U01CA243688 (MACK, JENNIFER W) Sep 18, 2019 - Aug 31, 2024
    NIH/NCI
    The AYA-RISE Intervention: Risk Information and Screening Education for Adolescents and Young Adults with Cancer Predisposition Syndromes
    Role: Principal Investigator
  2. R01CA218651 (MACK, JENNIFER W) Feb 13, 2018 - Jan 31, 2023
    NIH/NCI
    End-of-Life Care for Adolescents and Young Adults with Cancer: An Evaluation of Care and Development of Patient-Centered Quality Measures
    Role: Principal Investigator
  3. U01CA218651 (MACK, JENNIFER W) Feb 13, 2018 - Jan 31, 2023
    NIH/NCI
    End-of-Life Care for Adolescents and Young Adults with Cancer: An Evaluation of Care and Development of Patient-Centered Quality Measures
    Role: Principal Investigator
  4. R21NR016580 (MACK, JENNIFER W) Aug 15, 2016 - Jul 31, 2018
    NIH/NINR
    Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty
    Role: Principal Investigator
  5. R01CA175759 (REEVE, BRYCE B) Apr 1, 2013 - Mar 31, 2019
    NIH/NCI
    CHANGE OF GRANTEE INSTITUTION: Creating and Validating Child Adverse Event Reporting in Oncology Trials
    Role: Co-Principal Investigator

Bibliographic
selected publications
Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
  1. Lindley LC, Keim-Malpass J, Svynarenko R, Cozad MJ, Mack JW, Hinds PS. Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research. J Hosp Palliat Nurs. 2020 Jun; 22(3):238-245. PMID: 32282559.
    Citations:    
  2. Greenzang KA, Fasciano KM, Block SD, Mack JW. Early information needs of adolescents and young adults about late effects of cancer treatment. Cancer. 2020 May 04. PMID: 32365227.
    Citations:    
  3. Mack JW, Uno H, Twist CJ, Bagatell R, Rosenberg AR, Marachelian A, Granger MM, Bender JG, Baker JN, Park JR, Cohn SL, Fernandez JH, Diller LR, Shusterman S. Racial and Ethnic Differences in Communication and Care for Children with Advanced Cancer. J Pain Symptom Manage. 2020 Apr 30. PMID: 32360991.
    Citations:    
  4. Greenzang KA, Al-Sayegh H, Ma C, Najafzadeh M, Wittenberg E, Mack JW. Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics. 2020 May; 145(5). PMID: 32284427.
    Citations:    
  5. Buiting HM, de Bree R, Brom L, Mack JW, van den Brekel MWM. Humour and laughing in patients with prolonged incurable cancer: an ethnographic study in a comprehensive cancer centre. Qual Life Res. 2020 Apr 06. PMID: 32249383.
    Citations:    
  6. Steineck A, Wiener L, Mack JW, Shah NN, Summers C, Rosenberg AR. Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy. Pediatr Blood Cancer. 2020 May; 67(5):e28249. PMID: 32159278.
    Citations:    
  7. Sisk BA, Fasciano K, Block SD, Mack JW. Oncologists' Communication and Decision-Making Behaviors Affect Perceptions of Sensitive Information Exchange for Adolescent and Young Adult Patients. J Palliat Med. 2020 Mar; 23(3):310-311. PMID: 32105550.
    Citations:    
  8. Isack A, Santana VM, Russo C, Klosky JL, Fasciano K, Block SD, Mack JW. Communication Regarding Therapeutic Clinical Trial Enrollment Between Oncologists and Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2020 Feb 26. PMID: 32101064.
    Citations:    
  9. Reeve BB, McFatrich M, Mack JW, Maurer SH, Jacobs SS, Freyer DR, Withycombe JS, Baker JN, Castellino SM, Lin L, Lucas NR, Hinds PS. Validity and Reliability of the Pediatric Patient-Reported Outcomes - Common Terminology Criteria for Adverse Events. J Natl Cancer Inst. 2020 Jan 30. PMID: 31999349.
    Citations:    
  10. Sisk BA, Dobrozsi S, Mack JW. Teamwork in prognostic communication: Addressing bottlenecks and barriers. Pediatr Blood Cancer. 2020 May; 67(5):e28192. PMID: 31965719.
    Citations:    
  11. Reeve BB, McFatrich M, Mack JW, Pinheiro LC, Jacobs SS, Baker JN, Withycombe JS, Lin L, Mann CM, Villabroza KR, Hinds PS. Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. Pediatr Blood Cancer. 2020 Apr; 67(4):e28160. PMID: 31904157.
    Citations:    
  12. Mack JW. On listening. Cancer. 2020 Jan 01; 126(9):1828-1831. PMID: 31967674.
    Citations:    
  13. Gittzus JA, Fasciano KM, Block SD, Mack JW. Peace of mind among adolescents and young adults with cancer. Psychooncology. 2020 03; 29(3):572-578. PMID: 31825157.
    Citations:    
  14. Lin B, Gutman T, Hanson CS, Ju A, Manera K, Butow P, Cohn RJ, Dalla-Pozza L, Greenzang KA, Mack J, Wakefield CE, Craig JC, Tong A. Communication during childhood cancer: Systematic review of patient perspectives. Cancer. 2020 Feb 15; 126(4):701-716. PMID: 31821552.
    Citations:    
  15. Roeland EJ, Lindley LC, Gilbertson-White S, Saeidzadeh S, Currie ER, Friedman S, Bakitas M, Mack JW. End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer. 2020 Feb 15; 126(4):886-893. PMID: 31724747.
    Citations:    
  16. Sisk BA, Friedrich AB, DuBois J, Mack JW. Emotional Communication in Advanced Pediatric Cancer Conversations. J Pain Symptom Manage. 2020 Apr; 59(4):808-817.e2. PMID: 31733356.
    Citations:    
  17. Wiener L, Tager J, Mack J, Battles H, Bedoya SZ, Gerhardt CA. Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents. Pediatr Blood Cancer. 2020 02; 67(2):e27993. PMID: 31595653.
    Citations:    
  18. Mack JW, Cronin AM, Uno H, Shusterman S, Twist CJ, Bagatell R, Rosenberg A, Marachelian A, Granger MM, Glade Bender J, Baker JN, Park J, Cohn SL, Levine A, Taddei S, Diller LR. Unrealistic parental expectations for cure in poor-prognosis childhood cancer. Cancer. 2020 Jan 15; 126(2):416-424. PMID: 31584705.
    Citations:    
  19. Sisk BA, Fasciano K, Block SD, Mack JW. Longitudinal prognostic communication needs of adolescents and young adults with cancer. Cancer. 2020 Jan 15; 126(2):400-407. PMID: 31568584.
    Citations:    
  20. McFatrich M, Brondon J, Lucas NR, Hinds PS, Maurer SH, Mack JW, Freyer DR, Jacobs SS, Baker JN, Mowbray C, Wang M, Castellino SM, Barz Leahy A, Reeve BB. Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. Cancer. 2020 Jan 01; 126(1):140-147. PMID: 31553494.
    Citations:    
  21. Sisk BA, Schulz GL, Mack JW, Yaeger L, DuBois J. Communication interventions in adult and pediatric oncology: A scoping review and analysis of behavioral targets. PLoS One. 2019; 14(8):e0221536. PMID: 31437262.
    Citations:    
  22. Sisk BA, Kang TI, Mack JW. Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology. J Palliat Med. 2020 Feb; 23(2):192-197. PMID: 31408409.
    Citations:    
  23. Sisk BA, Mack JW, DuBois J. Knowing versus doing: The value of behavioral change models for emotional communication in oncology. Patient Educ Couns. 2019 12; 102(12):2344-2348. PMID: 31362900.
    Citations:    
  24. Sisk BA, Kang TI, Mack JW. The evolution of regret: decision-making for parents of children with cancer. Support Care Cancer. 2020 Mar; 28(3):1215-1222. PMID: 31297592.
    Citations:    
  25. Graetz D, Fasciano K, Rodriguez-Galindo C, Block SD, Mack JW. Things that matter: Adolescent and young adult patients' priorities during cancer care. Pediatr Blood Cancer. 2019 09; 66(9):e27883. PMID: 31207103.
    Citations:    
  26. Dobrozsi S, Trowbridge A, Mack JW, Rosenberg AR. Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team. Am Soc Clin Oncol Educ Book. 2019 Jan; 39:573-581. PMID: 31099665.
    Citations:    
  27. Mack JW, Fasciano KM, Block SD. Adolescent and Young Adult Cancer Patients' Experiences With Treatment Decision-making. Pediatrics. 2019 05; 143(5). PMID: 31000684.
    Citations:    
  28. Habib AR, Cronin AM, Earle CC, Tulsky JA, Mack JW, Abel GA, Odejide OO. How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med. 2019 06; 22(6):677-684. PMID: 30907686.
    Citations:    
  29. Olalde I, Mallick S, Patterson N, Rohland N, Villalba-Mouco V, Silva M, Dulias K, Edwards CJ, Gandini F, Pala M, Soares P, Ferrando-Bernal M, Adamski N, Broomandkhoshbacht N, Cheronet O, Culleton BJ, Fernandes D, Lawson AM, Mah M, Oppenheimer J, Stewardson K, Zhang Z, Jiménez Arenas JM, Toro Moyano IJ, Salazar-García DC, Castanyer P, Santos M, Tremoleda J, Lozano M, García Borja P, Fernández-Eraso J, Mujika-Alustiza JA, Barroso C, Bermúdez FJ, Viguera Mínguez E, Burch J, Coromina N, Vivó D, Cebrià A, Fullola JM, García-Puchol O, Morales JI, Oms FX, Majó T, Vergès JM, Díaz-Carvajal A, Ollich-Castanyer I, López-Cachero FJ, Silva AM, Alonso-Fernández C, Delibes de Castro G, Jiménez Echevarría J, Moreno-Márquez A, Pascual Berlanga G, Ramos-García P, Ramos-Muñoz J, Vijande Vila E, Aguilella Arzo G, Esparza Arroyo Á, Lillios KT, Mack J, Velasco-Vázquez J, Waterman A, Benítez de Lugo Enrich L, Benito Sánchez M, Agustí B, Codina F, de Prado G, Estalrrich A, Fernández Flores Á, Finlayson C, Finlayson G, Finlayson S, Giles-Guzmán F, Rosas A, Barciela González V, García Atiénzar G, Hernández Pérez MS, Llanos A, Carrión Marco Y, Collado Beneyto I, López-Serrano D, Sanz Tormo M, Valera AC, Blasco C, Liesau C, Ríos P, Daura J, de Pedro Michó MJ, Diez-Castillo AA, Flores Fernández R, Francès Farré J, Garrido-Pena R, Gonçalves VS, Guerra-Doce E, Herrero-Corral AM, Juan-Cabanilles J, López-Reyes D, McClure SB, Merino Pérez M, Oliver Foix A, Sanz Borràs M, Sousa AC, Vidal Encinas JM, Kennett DJ, Richards MB, Werner Alt K, Haak W, Pinhasi R, Lalueza-Fox C, Reich D. The genomic history of the Iberian Peninsula over the past 8000 years. Science. 2019 03 15; 363(6432):1230-1234. PMID: 30872528.
    Citations:    
  30. Dombrowski ND, Wolter NE, Irace AL, Cunningham MJ, Mack JW, Marcus KJ, Vargas SO, Perez-Atayde AR, Robson CD, Rahbar R. Mucoepidermoid carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 May; 120:93-99. PMID: 30772619.
    Citations:    
  31. Brand McCarthy SR, Kang TI, Mack JW. Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process. Support Care Cancer. 2019 Apr; 27(4):1319-1324. PMID: 30675664.
    Citations:    Fields:    
  32. Marron JM, Cronin AM, DuBois SG, Glade-Bender J, Kim A, Crompton BD, Meyer SC, Janeway KA, Mack JW. Duality of purpose: Participant and parent understanding of the purpose of genomic tumor profiling research among children and young adults with solid tumors. JCO Precis Oncol. 2019; 3. PMID: 31240271.
    Citations:    
  33. Sisk BA, Weng S, Mack JW. Persistently low peace of mind in parents of cancer patients: A five-year follow-up study. Pediatr Blood Cancer. 2019 05; 66(5):e27609. PMID: 30663226.
    Citations:    Fields:    
  34. Sisk BA, Kang TI, Goldstein R, DuBois JM, Mack JW. Decisional burden among parents of children with cancer. Cancer. 2019 04 15; 125(8):1365-1372. PMID: 30602060.
    Citations:    Fields:    
  35. Dombrowski ND, Wolter NE, Irace AL, Robson CD, Perez-Atayde AR, Mack JW, Rahbar R. Squamous cell carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 Feb; 117:131-137. PMID: 30579067.
    Citations:    Fields:    
  36. Greenzang KA, Cronin AM, Kang TI, Mack JW. Parental distress and desire for information regarding long-term implications of pediatric cancer treatment. Cancer. 2018 12 01; 124(23):4529-4537. PMID: 30276800.
    Citations:    
  37. Oishi T, Sato K, Morita T, Mack JW, Shimodaira H, Takahashi M, Takahashi S, Inoue A, Murakawa Y, Kawahara M, Ishioka C, Miyashita M. Patient perceptions of curability and physician-reported disclosures of incurability in Japanese patients with unresectable/recurrent cancer: a cross-sectional survey. Jpn J Clin Oncol. 2018 Oct 01; 48(10):913-919. PMID: 30102399.
    Citations:    Fields:    Translation:Humans
  38. Mack JW. The PRISM intervention for adolescents and young adults with cancer: Paying attention to the patient as a whole person. Cancer. 2018 10 01; 124(19):3802-3805. PMID: 30230523.
    Citations:    Fields:    
  39. Hseu A, Ayele N, Kawai K, Frazier AL, Mack J, Watters K, Nuss R, Rahbar R. Pediatric vincristine-related vocal fold paralysis. Int J Pediatr Otorhinolaryngol. 2018 11; 114:166-169. PMID: 30262358.
    Citations:    Fields:    
  40. Currie ER, McPeters SL, Mack JW. Closing the Gap on Pediatric Palliative Oncology Disparities. Semin Oncol Nurs. 2018 08; 34(3):294-302. PMID: 30100370.
    Citations:    Fields:    Translation:Humans
  41. Sisk BA, Mack JW. How Should We Enhance the Process and Purpose of Prognostic Communication in Oncology? AMA J Ethics. 2018 08 01; 20(8):E757-765. PMID: 30118426.
    Citations:    Fields:    
  42. Mack JW, Fasciano KM, Block SD. Communication About Prognosis With Adolescent and Young Adult Patients With Cancer: Information Needs, Prognostic Awareness, and Outcomes of Disclosure. J Clin Oncol. 2018 06 20; 36(18):1861-1867. PMID: 29683788.
    Citations: 1     Fields:    
  43. Mack JW, Frederick NN. Reply to: Comment on: Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 07; 65(7):e27049. PMID: 29603615.
    Citations:    Fields:    
  44. Greenzang KA, Cronin AM, Kang T, Mack JW. Parent understanding of the risk of future limitations secondary to pediatric cancer treatment. Pediatr Blood Cancer. 2018 07; 65(7):e27020. PMID: 29603610.
    Citations:    Fields:    
  45. Ilowite MF, Kang TI, Mack JW. Reply to Cross-cultural communication in pediatric oncology: Catch them when they're young. Cancer. 2018 04 01; 124(7):1517. PMID: 29437203.
    Citations:    Fields:    
  46. Greenzang KA, Dauti A, Mack JW. Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer. 2018 06; 65(6):e26978. PMID: 29380535.
    Citations:    Fields:    
  47. Sisk BA, Kang TI, Mack JW. Sources of parental hope in pediatric oncology. Pediatr Blood Cancer. 2018 06; 65(6):e26981. PMID: 29369485.
    Citations: 1     Fields:    
  48. Marron JM, Cronin AM, Kang TI, Mack JW. Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology. Cancer. 2018 03 15; 124(6):1232-1241. PMID: 29278434.
    Citations:    Fields:    
  49. Frederick NN, Mack JW. Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 04; 65(4). PMID: 29251410.
    Citations:    Fields:    
  50. Sisk BA, Kang TI, Mack JW. How Parents of Children With Cancer Learn About Their Children's Prognosis. Pediatrics. 2018 01; 141(1). PMID: 29208726.
    Citations:    Fields:    Translation:Humans
  51. Pinheiro LC, McFatrich M, Lucas N, Walker JS, Withycombe JS, Hinds PS, Sung L, Tomlinson D, Freyer DR, Mack JW, Baker JN, Reeve BB. Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res. 2018 02; 27(2):291-319. PMID: 28879501.
    Citations: 1     Fields:    Translation:Humans
  52. Ilowite MF, Cronin AM, Kang TI, Mack JW. Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity. Cancer. 2017 Oct 15; 123(20):3995-4003. PMID: 28873224.
    Citations: 1     Fields:    Translation:Humans
  53. Mack JW, Jacobson J, Frank D, Cronin AM, Horvath K, Allen V, Wind J, Schrag D. Evaluation of Patient and Family Outpatient Complaints as a Strategy to Prioritize Efforts to Improve Cancer Care Delivery. Jt Comm J Qual Patient Saf. 2017 Oct; 43(10):498-507. PMID: 28942774.
    Citations: 1     Fields:    
  54. Mack JW. Pediatric Palliative Care-A Shared Priority. JAMA Oncol. 2017 09 01; 3(9):1220-1221. PMID: 28278338.
    Citations: 2     Fields:    
  55. Tulsky JA, Beach MC, Butow PN, Hickman SE, Mack JW, Morrison RS, Street RL, Sudore RL, White DB, Pollak KI. A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med. 2017 09 01; 177(9):1361-1366. PMID: 28672373.
    Citations: 10     Fields:    Translation:Humans
  56. Sisk BA, Greenzang KA, Kang TI, Mack JW. Longitudinal parental preferences for late effects communication during cancer treatment. Pediatr Blood Cancer. 2018 Jan; 65(1). PMID: 28792684.
    Citations: 1     Fields:    Translation:Humans
  57. Sisk BA, Mack JW, Ashworth R, DuBois J. Communication in pediatric oncology: State of the field and research agenda. Pediatr Blood Cancer. 2018 Jan; 65(1). PMID: 28748597.
    Citations: 3     Fields:    Translation:Humans
  58. Duberstein PR, Chen M, Chapman BP, Hoerger M, Saeed F, Guancial E, Mack JW. Fatalism and educational disparities in beliefs about the curability of advanced cancer. Patient Educ Couns. 2018 Jan; 101(1):113-118. PMID: 28716485.
    Citations: 1     Fields:    Translation:Humans
  59. Danaher TS, Brand SR, Pickard LSS, Mack JW, Berry LL. How a Child With Cancer Moved From Vulnerability to Resilience. J Clin Oncol. 2017 09 20; 35(27):3169-3171. PMID: 28644775.
    Citations:    Fields:    
  60. Weaver MS, Mack JW. Holding hope. Pediatr Blood Cancer. 2017 09; 64(9). PMID: 28521073.
    Citations:    Fields:    Translation:Humans
  61. Sisk BA, Kang TI, Mack JW. Prognostic disclosures over time: Parental preferences and physician practices. Cancer. 2017 Oct 15; 123(20):4031-4038. PMID: 28369836.
    Citations: 2     Fields:    Translation:Humans
  62. Reeve BB, McFatrich M, Pinheiro LC, Freyer DR, Basch EM, Baker JN, Withycombe JS, Sung L, Mack JW, Waldron MK, Mowbray C, Palma D, Hinds PS. Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer. J Pain Symptom Manage. 2017 04; 53(4):759-766. PMID: 28062347.
    Citations: 3     Fields:    Translation:Humans
  63. Sobota AE, Shah N, Mack JW. Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer. 2017 06; 64(6). PMID: 27905689.
    Citations: 1     Fields:    Translation:Humans
  64. Brand SR, Fasciano K, Mack JW. Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Support Care Cancer. 2017 03; 25(3):769-774. PMID: 27747479.
    Citations: 2     Fields:    Translation:Humans
  65. Mack JW, Ilowite M, Taddei S. Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives. Cancer. 2017 02 15; 123(4):675-681. PMID: 27727442.
    Citations: 1     Fields:    Translation:Humans
  66. Mack JW, Cronin AM, Kang TI. Decisional Regret Among Parents of Children With Cancer. J Clin Oncol. 2016 11 20; 34(33):4023-4029. PMID: 27621402.
    Citations: 7     Fields:    Translation:Humans
  67. Reeve BB, McFatrich M, Pinheiro LC, Weaver MS, Sung L, Withycombe JS, Baker JN, Mack JW, Waldron MK, Gibson D, Tomlinson D, Freyer DR, Mowbray C, Jacobs S, Palma D, Martens CE, Gold SH, Jackson KD, Hinds PS. Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. Pediatr Blood Cancer. 2017 03; 64(3). PMID: 27650708.
    Citations: 6     Fields:    Translation:Humans
  68. Sisk BA, Bluebond-Langner M, Wiener L, Mack J, Wolfe J. Prognostic Disclosures to Children: A Historical Perspective. Pediatrics. 2016 09; 138(3). PMID: 27561728.
    Citations: 3     Fields:    Translation:Humans
  69. Brand SR, Pickard L, Mack JW, Berry LL. What Adult Cancer Care Can Learn From Pediatrics. J Oncol Pract. 2016 09; 12(9):765-7. PMID: 27531379.
    Citations:    Fields:    Translation:Humans
  70. Mack JW, Cannavale K, Sattayapiwat O, Cheung B, Chen LH, Cooper RM, Chao CR. Care in the Final Month of Life among Adolescent and Young Adult Cancer Patients in Kaiser Permanente Southern California. J Palliat Med. 2016 11; 19(11):1136-1141. PMID: 27482745.
    Citations: 1     Fields:    Translation:Humans
  71. Marron JM, DuBois SG, Glade Bender J, Kim A, Crompton BD, Meyer SC, Janeway KA, Mack JW. Patient/parent perspectives on genomic tumor profiling of pediatric solid tumors: The Individualized Cancer Therapy (iCat) experience. Pediatr Blood Cancer. 2016 11; 63(11):1974-82. PMID: 27429135.
    Citations: 1     Fields:    Translation:Humans
  72. Lindley LC, Mixer SJ, Mack JW. Home care for children with multiple complex chronic conditions at the end of life: The choice of hospice versus home health. Home Health Care Serv Q. 2016 Jul-Dec; 35(3-4):101-111. PMID: 27383451.
    Citations: 1     Fields:    Translation:Humans
  73. Walling AM, Keating NL, Kahn KL, Dy S, Mack JW, Malin J, Arora NK, Adams JL, Antonio AL, Tisnado D. Lower Patient Ratings of Physician Communication Are Associated With Unmet Need for Symptom Management in Patients With Lung and Colorectal Cancer. J Oncol Pract. 2016 06; 12(6):e654-69. PMID: 27221991.
    Citations: 3     Fields:    Translation:Humans
  74. Greenzang KA, Cronin AM, Mack JW. Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer. Cancer. 2016 08 15; 122(16):2587-94. PMID: 27219336.
    Citations: 3     Fields:    Translation:Humans
  75. Nyborn JA, Olcese M, Nickerson T, Mack JW. "Don't Try to Cover the Sky with Your Hands": Parents' Experiences with Prognosis Communication About Their Children with Advanced Cancer. J Palliat Med. 2016 06; 19(6):626-31. PMID: 27115314.
    Citations: 5     Fields:    Translation:Humans
  76. Feraco AM, Brand SR, Mack JW, Kesselheim JC, Block SD, Wolfe J. Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016 Jun; 63(6):966-72. PMID: 26822066.
    Citations: 3     Fields:    Translation:Humans
  77. Lindley LC, Mack JW, Bruce DJ. Clusters of Multiple Complex Chronic Conditions: A Latent Class Analysis of Children at End of Life. J Pain Symptom Manage. 2016 05; 51(5):868-74. PMID: 26747723.
    Citations: 2     Fields:    Translation:Humans
  78. Sanford E, Wolbrink T, Mack J, Rowe RG. Severe Tumor Lysis Syndrome and Acute Pulmonary Edema Requiring Extracorporeal Membrane Oxygenation Following Initiation of Chemotherapy for Metastatic Alveolar Rhabdomyosarcoma. Pediatr Blood Cancer. 2016 May; 63(5):928-30. PMID: 26713672.
    Citations: 1     Fields:    Translation:Humans
  79. Sobota AE, Umeh E, Mack JW. Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease. J Hematol Res. 2015 Dec; 2(1):17-24. PMID: 27175364.
    Citations: 4     
  80. Mack JW, Chen K, Boscoe FP, Gesten FC, Roohan PJ, Schymura MJ, Schrag D. High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program. Med Care. 2015 Dec; 53(12):1018-26. PMID: 26492211.
    Citations: 6     Fields:    Translation:Humans
  81. Brooks GA, Cronin AM, Uno H, Schrag D, Keating NL, Mack JW. Intensity of Medical Interventions between Diagnosis and Death in Patients with Advanced Lung and Colorectal Cancer: A CanCORS Analysis. J Palliat Med. 2016 Jan; 19(1):42-50. PMID: 26600474.
    Citations: 2     Fields:    Translation:Humans
  82. Mack JW, Cronin A, Fasciano K, Block SD, Keating NL. Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age. Psychooncology. 2016 09; 25(9):1085-91. PMID: 26335435.
    Citations: 3     Fields:    Translation:Humans
  83. Wiener L, Feudtner C, Hinds P, Wolfe J, Mack J. Deeper Conversations Need Not Wait Until the End. J Clin Oncol. 2015 Nov 20; 33(33):3974. PMID: 26282649.
    Citations: 1     Fields:    Translation:Humans
  84. Mack JW, Chen LH, Cannavale K, Sattayapiwat O, Cooper RM, Chao CR. End-of-Life Care Intensity Among Adolescent and Young Adult Patients With Cancer in Kaiser Permanente Southern California. JAMA Oncol. 2015 Aug; 1(5):592-600. PMID: 26181778.
    Citations: 10     Fields:    Translation:Humans
  85. Kamihara J, Nyborn JA, Olcese ME, Nickerson T, Mack JW. Parental hope for children with advanced cancer. Pediatrics. 2015 May; 135(5):868-74. PMID: 25847801.
    Citations: 10     Fields:    Translation:Humans
  86. Kehl KL, Landrum MB, Arora NK, Ganz PA, van Ryn M, Mack JW, Keating NL. Association of Actual and Preferred Decision Roles With Patient-Reported Quality of Care: Shared Decision Making in Cancer Care. JAMA Oncol. 2015 Apr; 1(1):50-8. PMID: 26182303.
    Citations: 22     Fields:    Translation:Humans
  87. Marron JM, Mack JW. When to say when: How aggressively to care for children with multiply relapsed cancer? Pediatr Blood Cancer. 2015 Jul; 62(7):1119-20. PMID: 25755229.
    Citations:    Fields:    Translation:HumansPHPublic Health
  88. Hobbs GS, Landrum MB, Arora NK, Ganz PA, van Ryn M, Weeks JC, Mack JW, Keating NL. The role of families in decisions regarding cancer treatments. Cancer. 2015 Apr 01; 121(7):1079-87. PMID: 25708952.
    Citations: 9     Fields:    Translation:Humans
  89. Mack JW, Walling A, Dy S, Antonio AL, Adams J, Keating NL, Tisnado D. Patient beliefs that chemotherapy may be curative and care received at the end of life among patients with metastatic lung and colorectal cancer. Cancer. 2015 Jun 01; 121(11):1891-7. PMID: 25677655.
    Citations: 10     Fields:    Translation:Humans
  90. Keating NL, Kahn KL, Dy SM, Malin J, Arora NK, Mack JW, Adams JL, Antonio AL, Pantoja P, Tisnado DM. Association of lower patient ratings of physician communication with need for symptom management in lung and colorectal cancer patients. J Clin Oncol. 2014 Nov; 32(31_suppl):153. PMID: 28142720.
    Citations:    
  91. Lindley LC, Zhou W, Mack JW, Li X. Pediatric hospice and palliative care: designing a mobile app for clinical practice. Comput Inform Nurs. 2014 Jul; 32(7):299-302. PMID: 25032671.
    Citations: 1     Fields:    Translation:Humans
  92. Walling AM, Weeks JC, Kahn KL, Tisnado D, Keating NL, Dy SM, Arora NK, Mack JW, Pantoja PM, Malin JL. Symptom prevalence in lung and colorectal cancer patients. J Pain Symptom Manage. 2015 Feb; 49(2):192-202. PMID: 24973624.
    Citations: 9     Fields:    Translation:Humans
  93. Liu PH, Landrum MB, Weeks JC, Huskamp HA, Kahn KL, He Y, Mack JW, Keating NL. Physicians' propensity to discuss prognosis is associated with patients' awareness of prognosis for metastatic cancers. J Palliat Med. 2014 Jun; 17(6):673-82. PMID: 24742212.
    Citations: 10     Fields:    Translation:Humans
  94. Dy SM, Walling AM, Mack JW, Malin JL, Pantoja P, Lorenz KA, Tisnado DM. Evaluating the quality of supportive oncology using patient-reported data. J Oncol Pract. 2014 Jul; 10(4):e223-30. PMID: 24618077.
    Citations: 2     Fields:    Translation:Humans
  95. Mack JW, Joffe S. Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics. 2014 Feb; 133 Suppl 1:S24-30. PMID: 24488537.
    Citations: 14     Fields:    Translation:Humans
  96. Joffe S, Mack JW. Deliberation and the life cycle of informed consent. Hastings Cent Rep. 2014 Jan-Feb; 44(1):33-5. PMID: 24408598.
    Citations:    Fields:    Translation:Humans
  97. Kaye E, Mack JW. Parent perceptions of the quality of information received about a child's cancer. Pediatr Blood Cancer. 2013 Nov; 60(11):1896-901. PMID: 23775852.
    Citations: 6     Fields:    Translation:Humans
  98. Mack JW, Chen K, Boscoe FP, Gesten FC, Roohan PJ, Weeks JC, Schymura MJ, Schrag D. Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California. J Clin Oncol. 2013 Jul 10; 31(20):2569-79. PMID: 23733768.
    Citations: 14     Fields:    Translation:Humans
  99. Benoit MM, Vargas SO, Bhattacharyya N, McGill TA, Robson CD, Ferraro N, Didas AE, Labow BI, Upton J, Taghinia A, Meara JG, Marcus KJ, Mack J, Rodriguez-Galindo C, Rahbar R. The presentation and management of mandibular tumors in the pediatric population. Laryngoscope. 2013 Aug; 123(8):2035-42. PMID: 23670306.
    Citations:    Fields:    Translation:Humans
  100. Weeks JC, Mack JW, Schrag D. Talking with patients about dying. N Engl J Med. 2013 01 31; 368(5):480-1. PMID: 23363507.
    Citations: 2     Fields:    Translation:Humans
  101. Dy SM, Malin J, Mack JW, Kim B, Lorenz K, Tisnado DM. Evaluating the quality of supportive oncology using patient-reported survey data. J Clin Oncol. 2012 Dec; 30(34_suppl):42. PMID: 28146915.
    Citations:    
  102. Mack JW, Cronin A, Keating NL, Taback N, Huskamp HA, Malin JL, Earle CC, Weeks JC. Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study. J Clin Oncol. 2012 Dec 10; 30(35):4387-95. PMID: 23150700.
    Citations: 63     Fields:    Translation:Humans
  103. Weeks JC, Catalano PJ, Cronin A, Finkelman MD, Mack JW, Keating NL, Schrag D. Patients' expectations about effects of chemotherapy for advanced cancer. N Engl J Med. 2012 Oct 25; 367(17):1616-25. PMID: 23094723.
    Citations: 178     Fields:    Translation:Humans
  104. Lindley LC, Mixer S, Mack JW. Profit status and delivery of hospice care for infants: the mediating role of pediatric knowledge. J Palliat Med. 2012 Dec; 15(12):1369-73. PMID: 23030306.
    Citations:    Fields:    Translation:Humans
  105. Ala L, Mack J, Shaw R, Gasson A, Cogbill E, Marion R, Rahman R, Deibel F, Rathbone N. Selecting ambulatory emergency care (AEC) patients from the medical emergency in-take: the derivation and validation of the Amb score. Clin Med (Lond). 2012 Oct; 12(5):420-6. PMID: 23101140.
    Citations:    Fields:    Translation:Humans
  106. Williams DA, Mack J. Enough is indeed enough: ACGME required changes in pediatric training. Pediatr Blood Cancer. 2012 Dec 15; 59(7):1158-9. PMID: 22996805.
    Citations:    Fields:    Translation:Humans
  107. Mack JW, Smith TJ. Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved. J Clin Oncol. 2012 Aug 01; 30(22):2715-7. PMID: 22753911.
    Citations: 49     Fields:    Translation:Humans
  108. Volpe D, Harrison S, Damian F, Rachh P, Kahlon PS, Morrissey L, Mack J, Akenroye A, Stack AM. Improving timeliness of antibiotic delivery for patients with fever and suspected neutropenia in a pediatric emergency department. Pediatrics. 2012 Jul; 130(1):e201-10. PMID: 22711718.
    Citations: 7     Fields:    Translation:Humans
  109. Olcese ME, Mack JW. Research participation experiences of parents of children with cancer who were asked about their child's prognosis. J Palliat Med. 2012 Mar; 15(3):269-73. PMID: 22339249.
    Citations: 2     Fields:    Translation:Humans
  110. Mack JW, Cronin A, Taback N, Huskamp HA, Keating NL, Malin JL, Earle CC, Weeks JC. End-of-life care discussions among patients with advanced cancer: a cohort study. Ann Intern Med. 2012 Feb 07; 156(3):204-10. PMID: 22312140.
    Citations: 65     Fields:    Translation:Humans
  111. Mack JW, Feudtner C, Hinds PS. Communication and decision support for children with advanced cancer and their families. Am Soc Clin Oncol Educ Book. 2012; 637-43. PMID: 24451811.
    Citations: 2     Fields:    
  112. Mack JW, Cronin A, Taback N, Huskamp H, Keating NL, Malin J, Earle C, Weeks JC. Discussions about end-of-life care planning between physicians and patients with stage IV lung or colorectal cancer. J Clin Oncol. 2011 May 20; 29(15_suppl):6026. PMID: 28021965.
    Citations:    
  113. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol. 2011 May 20; 29(15):2085-90. PMID: 21464400.
    Citations: 8     Fields:    Translation:Humans
  114. Williams DA, Porter ES, Lux SE, Grier HE, Mack JW, Orkin SH. Training program in cancer and blood diseases: Pediatric Hematology/Oncology Fellowship Program, Children's Hospital Boston/Dana-Farber Cancer Institute. Am J Hematol. 2010 Oct; 85(10):793-4. PMID: 20730793.
    Citations: 1     Fields:    Translation:Humans
  115. Wright AA, Mack JW, Kritek PA, Balboni TA, Massaro AF, Matulonis UA, Block SD, Prigerson HG. Influence of patients' preferences and treatment site on cancer patients' end-of-life care. Cancer. 2010 Oct 01; 116(19):4656-63. PMID: 20572030.
    Citations: 28     Fields:    Translation:Humans
  116. Mack JW, Paulk ME, Viswanath K, Prigerson HG. Racial disparities in the outcomes of communication on medical care received near death. Arch Intern Med. 2010 Sep 27; 170(17):1533-40. PMID: 20876403.
    Citations: 38     Fields:    Translation:Humans
  117. Lannen P, Wolfe J, Mack J, Onelov E, Nyberg U, Kreicbergs U. Absorbing information about a child's incurable cancer. Oncology. 2010; 78(3-4):259-66. PMID: 20523086.
    Citations: 6     Fields:    Translation:Humans
  118. Mack JW, Weeks JC, Wright AA, Block SD, Prigerson HG. End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol. 2010 Mar 01; 28(7):1203-8. PMID: 20124172.
    Citations: 120     Fields:    Translation:Humans
  119. Robson CD, Rahbar R, Vargas SO, Marcus KJ, Mack JW, Licameli GR, Grier HE. Sinonasal and laryngeal carcinoma in children: correlation of imaging characteristics with clinicopathologic and cytogenetic features. AJNR Am J Neuroradiol. 2010 Feb; 31(2):257-61. PMID: 19779003.
    Citations: 2     Fields:    Translation:HumansCells
  120. Mack JW, Block SD, Nilsson M, Wright A, Trice E, Friedlander R, Paulk E, Prigerson HG. Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale. Cancer. 2009 Jul 15; 115(14):3302-11. PMID: 19484795.
    Citations: 35     Fields:    Translation:Humans
  121. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of mind and sense of purpose as core existential issues among parents of children with cancer. Arch Pediatr Adolesc Med. 2009 Jun; 163(6):519-24. PMID: 19487607.
    Citations: 5     Fields:    Translation:Humans
  122. Wright AA, Mack JW, Trice ED, Balboni TA, Block SD, Prigerson HG. Personalized end-of-life care: Associations between patient preferences and treatment intensity near death. J Clin Oncol. 2009 May 20; 27(15_suppl):6516. PMID: 27964022.
    Citations:    
  123. Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, Mitchell SL, Jackson VA, Block SD, Maciejewski PK, Prigerson HG. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008 Oct 08; 300(14):1665-73. PMID: 18840840.
    Citations: 409     Fields:    Translation:Humans
  124. Mack JW, Joffe S, Hilden JM, Watterson J, Moore C, Weeks JC, Wolfe J. Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol. 2008 Oct 10; 26(29):4759-64. PMID: 18779605.
    Citations: 17     Fields:    Translation:Humans
  125. Jackson VA, Mack J, Matsuyama R, Lakoma MD, Sullivan AM, Arnold RM, Weeks JC, Block SD. A qualitative study of oncologists' approaches to end-of-life care. J Palliat Med. 2008 Jul; 11(6):893-906. PMID: 18715182.
    Citations: 23     Fields:    Translation:Humans
  126. Mack JW, Nilsson M, Balboni T, Friedlander RJ, Block SD, Trice E, Prigerson HG. Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness. Cancer. 2008 Jun; 112(11):2509-17. PMID: 18429006.
    Citations: 24     Fields:    Translation:Humans
  127. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of mind and sense of purpose as core existential issues among parents of children with cancer. J Clin Oncol. 2008 May 20; 26(15_suppl):9518. PMID: 27948256.
    Citations:    
  128. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Hope and prognostic disclosure. J Clin Oncol. 2007 Dec 10; 25(35):5636-42. PMID: 18065734.
    Citations: 44     Fields:    Translation:Humans
  129. Santucci G, Mack JW. Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexia. Pediatr Clin North Am. 2007 Oct; 54(5):673-89, x. PMID: 17933617.
    Citations: 3     Fields:    Translation:Humans
  130. Mack JW, Co JP, Goldmann DA, Weeks JC, Cleary PD. Quality of health care for children: role of health and chronic illness in inpatient care experiences. Arch Pediatr Adolesc Med. 2007 Sep; 161(9):828-34. PMID: 17768281.
    Citations: 5     Fields:    Translation:Humans
  131. Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. J Clin Oncol. 2007 Apr 10; 25(11):1357-62. PMID: 17416854.
    Citations: 26     Fields:    Translation:Humans
  132. Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006 Nov 20; 24(33):5265-70. PMID: 17114660.
    Citations: 45     Fields:    Translation:Humans
  133. Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of prognosis among parents of children with cancer: Parental optimism and the role of the parent-physician interaction. J Clin Oncol. 2006 Jun 20; 24(18_suppl):6033. PMID: 27954600.
    Citations:    
  134. Rahbar R, Grimmer JF, Vargas SO, Robson CD, Mack JW, Perez-Atayde AR, Marcus KJ, Grier HE, Healy GB, McGill TJ. Mucoepidermoid carcinoma of the parotid gland in children: A 10-year experience. Arch Otolaryngol Head Neck Surg. 2006 Apr; 132(4):375-80. PMID: 16618905.
    Citations: 4     Fields:    Translation:Humans
  135. Mack JW, Wolfe J. Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis. Curr Opin Pediatr. 2006 Feb; 18(1):10-4. PMID: 16470155.
    Citations: 16     Fields:    Translation:Humans
  136. Houlahan KE, Branowicki PA, Mack JW, Dinning C, McCabe M. Can end of life care for the pediatric patient suffering with escalating and intractable symptoms be improved? J Pediatr Oncol Nurs. 2006 Jan-Feb; 23(1):45-51. PMID: 16689405.
    Citations:    Fields:    Translation:Humans
  137. Mack JW, Hilden JM, Watterson J, Moore C, Turner B, Grier HE, Weeks JC, Wolfe J. Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol. 2005 Dec 20; 23(36):9155-61. PMID: 16172457.
    Citations: 41     Fields:    Translation:Humans
  138. Mack JW, Hilden JM, Watterson J, Grier HE, Weeks JC, Wolfe J. Factors associated with the quality of care at the end of life in children with cancer. J Clin Oncol. 2004 Jul 15; 22(14_suppl):8529. PMID: 28013755.
    Citations:    
  139. Mack JW, Grier HE. The Day One Talk. J Clin Oncol. 2004 Feb 01; 22(3):563-6. PMID: 14752081.
    Citations: 14     Fields:    Translation:Humans
  140. Godambe SA, Mack JW, Chung DS, Lindeman R, Lillehei CW, Colin AA. Iatrogenic pleuropulmonary charcoal instillation in a teenager. Pediatr Pulmonol. 2003 Jun; 35(6):490-3. PMID: 12746949.
    Citations:    Fields:    Translation:Humans
  141. Porter DK, Van Every MJ, Anthracite RF, Mack JW. Massive hemoptysis in cystic fibrosis. Arch Intern Med. 1983 Feb; 143(2):287-90. PMID: 6824394.
    Citations: 1     Fields:    Translation:Humans
  142. Mack JW, Fry MB, McIntosh DA. Pulmonary hypertension in systemic lupus erythematosus. N Engl J Med. 1973 Jul 19; 289(3):157-8. PMID: 4711347.
    Citations:    Fields:    Translation:Humans
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Funded by the NIH National Center for Advancing Translational Sciences through its Clinical and Translational Science Awards Program, grant number UL1TR002541.