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Robert Joel S. Graham, M.D.

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Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
  1. Sobotka SA, Dholakia A, Berry JG, Brenner M, Graham RJ, Goodman DM, Agrawal RK. Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives. Pediatr Pulmonol. 2020 Sep 19. PMID: 32949218.
    Citations:    
  2. Sobotka SA, Dholakia A, Agrawal RK, Berry JG, Brenner M, Graham RJ, Goodman DM. Discharge Practices for Children with Home Mechanical Ventilation Across the United States: Key Informant Perspectives. Ann Am Thorac Soc. 2020 Aug 11. PMID: 32780599.
    Citations:    
  3. Ali SO, Yeung T, McKeon M, Maddock M, Graham RJ, Nuss R, Rahbar R, Watters K. Patient and caregiver experiences at a Multidisciplinary Tracheostomy Clinic. Int J Pediatr Otorhinolaryngol. 2020 Oct; 137:110250. PMID: 32896358.
    Citations:    
  4. Amar-Dolan LG, Horn MH, O'Connell B, Parsons SK, Roussin CJ, Weinstock PH, Graham RJ. "This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy. Ann Am Thorac Soc. 2020 07; 17(7):860-868. PMID: 32267725.
    Citations:    
  5. Laventhal NT, Graham RJ, Rasmussen SA, Urion DK, Kang PB. Ethical decision-making for children with neuromuscular disorders in the COVID-19 crisis. Neurology. 2020 08 11; 95(6):260-265. PMID: 32482844.
    Citations:    
  6. Sobotka SA, Lynch E, Peek ME, Graham RJ. Readmission drivers for children with medical complexity: Home nursing shortages cause health crises. Pediatr Pulmonol. 2020 06; 55(6):1474-1480. PMID: 32212321.
    Citations:    
  7. Graham RJ, Ward E. X-linked myotubular myopathy and pulmonary blebs: Not just a muscle disorder. Muscle Nerve. 2019 12; 60(6):E36-E38. PMID: 31495930.
    Citations:    
  8. Graham RJ, Muntoni F, Hughes I, Yum SW, Kuntz NL, Yang ML, Byrne BJ, Prasad S, Alvarez R, Genetti CA, Haselkorn T, James ES, LaRusso LB, Noursalehi M, Rico S, Beggs AH. Mortality and respiratory support in X-linked myotubular myopathy: a RECENSUS retrospective analysis. Arch Dis Child. 2020 04; 105(4):332-338. PMID: 31484632.
    Citations:    
  9. Graham RJ, Amar-Dolan LR, Roussin CJ, Weinstock PH. Bridging the Stressful Gap Between ICU and Home: Medical Simulation for Pediatric Patients and Their Families. Pediatr Crit Care Med. 2019 04; 20(4):e221-e224. PMID: 30664592.
    Citations:    Fields:    
  10. Lee M, França UL, Graham RJ, McManus ML. Pre-Nusinersen Hospitalization Costs of Children With Spinal Muscular Atrophy. Pediatr Neurol. 2019 03; 92:3-5. PMID: 30591237.
    Citations:    Fields:    
  11. Sobotka SA, Gaur DS, Goodman DM, Agrawal RK, Berry JG, Graham RJ. Pediatric patients with home mechanical ventilation: The health services landscape. Pediatr Pulmonol. 2019 01; 54(1):40-46. PMID: 30461228.
    Citations:    Fields:    
  12. Pérez-Losada M, Graham RJ, Coquillette M, Jafarey A, Castro-Nallar E, Aira M, Hoptay C, Freishtat RJ, Mansbach JM. Tracheal Microbiota in Patients With a Tracheostomy Before, During and After an Acute Respiratory Infection. Pediatr Infect Dis J. 2018 11; 37(11):e269-e271. PMID: 29462107.
    Citations:    Fields:    
  13. Graham RJ, McManus ML, Rodday AM, Weidner RA, Parsons SK. Pediatric Specialty Care Model for Management of Chronic Respiratory Failure: Cost and Savings Implications and Misalignment With Payment Models. Pediatr Crit Care Med. 2018 05; 19(5):412-420. PMID: 29406371.
    Citations:    Fields:    
  14. Martinez EE, Quinn N, Arouchon K, Anzaldi R, Tarrant S, Ma NS, Griffin J, Darras BT, Graham RJ, Mehta NM. Comprehensive nutritional and metabolic assessment in patients with spinal muscular atrophy: Opportunity for an individualized approach. Neuromuscul Disord. 2018 06; 28(6):512-519. PMID: 29699728.
    Citations:    Fields:    
  15. Burgart AM, Magnus D, Tabor HK, Paquette ED, Frader J, Glover JJ, Jackson BM, Harrison CH, Urion DK, Graham RJ, Brandsema JF, Feudtner C. Ethical Challenges Confronted When Providing Nusinersen Treatment for Spinal Muscular Atrophy. JAMA Pediatr. 2018 Feb 01; 172(2):188-192. PMID: 29228163.
    Citations: 2     Fields:    
  16. Mercuri E, Finkel RS, Muntoni F, Wirth B, Montes J, Main M, Mazzone ES, Vitale M, Snyder B, Quijano-Roy S, Bertini E, Davis RH, Meyer OH, Simonds AK, Schroth MK, Graham RJ, Kirschner J, Iannaccone ST, Crawford TO, Woods S, Qian Y, Sejersen T. Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care. Neuromuscul Disord. 2018 02; 28(2):103-115. PMID: 29290580.
    Citations: 5     Fields:    
  17. Finkel RS, Mercuri E, Meyer OH, Simonds AK, Schroth MK, Graham RJ, Kirschner J, Iannaccone ST, Crawford TO, Woods S, Muntoni F, Wirth B, Montes J, Main M, Mazzone ES, Vitale M, Snyder B, Quijano-Roy S, Bertini E, Davis RH, Qian Y, Sejersen T. Diagnosis and management of spinal muscular atrophy: Part 2: Pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics. Neuromuscul Disord. 2018 03; 28(3):197-207. PMID: 29305137.
    Citations: 6     Fields:    
  18. Rodday AM, Graham RJ, Weidner RA, Rothrock NE, Dewalt DA, Parsons SK. Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss. J Patient Rep Outcomes. 2017; 1(1):10. PMID: 29757321.
    Citations:    
  19. Pérez-Losada M, Graham RJ, Coquillette M, Jafarey A, Castro-Nallar E, Aira M, Freishtat RJ, Mansbach JM. The temporal dynamics of the tracheal microbiome in tracheostomised patients with and without lower respiratory infections. PLoS One. 2017; 12(8):e0182520. PMID: 28796800.
    Citations: 1     Fields:    Translation:Humans
  20. Rodday AM, Terrin N, Leslie LK, Graham RJ, Parsons SK. Understanding the Relationship Between Child Health-Related Quality of Life and Parent Emotional Functioning in Pediatric Hematopoietic Stem Cell Transplant. J Pediatr Psychol. 2017 08 01; 42(7):804-814. PMID: 28369555.
    Citations: 2     Fields:    Translation:Humans
  21. Rodday AM, Graham RJ, Weidner RA, Terrin N, Leslie LK, Parsons SK. Predicting Health Care Utilization for Children With Respiratory Insufficiency Using Parent-Proxy Ratings of Children's Health-Related Quality of Life. J Pediatr Health Care. 2017 Nov - Dec; 31(6):654-662. PMID: 28629924.
    Citations: 1     Fields:    Translation:Humans
  22. Graham RJ, Rodday AM, Weidner RA, Parsons SK. The Impact on Family of Pediatric Chronic Respiratory Failure in the Home. J Pediatr. 2016 08; 175:40-6. PMID: 27289498.
    Citations: 1     Fields:    Translation:Humans
  23. Graham RJ, McManus ML, Rodday AM, Weidner RA, Parsons SK. Chronic respiratory failure: Utilization of a pediatric specialty integrated care program. Healthc (Amst). 2017 Mar; 5(1-2):23-28. PMID: 28668199.
    Citations: 1     Fields:    Translation:Humans
  24. Watters K, O'Neill M, Zhu H, Graham RJ, Hall M, Berry J. Two-year mortality, complications, and healthcare use in children with medicaid following tracheostomy. Laryngoscope. 2016 11; 126(11):2611-2617. PMID: 27060012.
    Citations: 1     Fields:    Translation:Humans
  25. Mehta NM, Newman H, Tarrant S, Graham RJ. Nutritional Status and Nutrient Intake Challenges in Children With Spinal Muscular Atrophy. Pediatr Neurol. 2016 Apr; 57:80-3. PMID: 26803333.
    Citations: 3     Fields:    Translation:Humans
  26. Haliloglu G, Topaloglu H. Evidence-based guideline summary: Evaluation, diagnosis, and management of congenital muscular dystrophy: Report of the Guideline Development Subcommittee of the American Academy of Neurology and the Practice Issues Review Panel of the American Association of Neuromuscular & Electrodiagnostic Medicine. Neurology. 2015 Oct 20; 85(16):1432. PMID: 26481930.
    Citations: 1     Fields:    Translation:Humans
  27. Kang PB, Morrison L, Iannaccone ST, Graham RJ, Bönnemann CG, Rutkowski A, Hornyak J, Wang CH, Christi C, North K. Author response. Neurology. 2015 Oct 20; 85(16):1432-3. PMID: 26771040.
    Citations:    Fields:    Translation:Humans
  28. Martinez EE, Bechard LJ, Smallwood CD, Duggan CP, Graham RJ, Mehta NM. Impact of Individualized Diet Intervention on Body Composition and Respiratory Variables in Children With Respiratory Insufficiency: A Pilot Intervention Study. Pediatr Crit Care Med. 2015 Jul; 16(6):e157-64. PMID: 25944746.
    Citations:    Fields:    Translation:Humans
  29. Kang PB, Morrison L, Iannaccone ST, Graham RJ, Bönnemann CG, Rutkowski A, Hornyak J, Wang CH, North K, Oskoui M, Getchius TS, Cox JA, Hagen EE, Gronseth G, Griggs RC. Evidence-based guideline summary: evaluation, diagnosis, and management of congenital muscular dystrophy: Report of the Guideline Development Subcommittee of the American Academy of Neurology and the Practice Issues Review Panel of the American Association of Neuromuscular & Electrodiagnostic Medicine. Neurology. 2015 Mar 31; 84(13):1369-78. PMID: 25825463.
    Citations: 10     Fields:    Translation:Humans
  30. Martinez EE, Smallwood CD, Bechard LJ, Graham RJ, Mehta NM. Metabolic assessment and individualized nutrition in children dependent on mechanical ventilation at home. J Pediatr. 2015 Feb; 166(2):350-7. PMID: 25444009.
    Citations: 2     Fields:    Translation:Humans
  31. Casavant DW, McManus ML, Parsons SK, Zurakowski D, Graham RJ. Trial of telemedicine for patients on home ventilator support: feasibility, confidence in clinical management and use in medical decision-making. J Telemed Telecare. 2014 Dec; 20(8):441-9. PMID: 25316042.
    Citations: 3     Fields:    Translation:Humans
  32. Mehta NM, Smallwood CD, Graham RJ. Current applications of metabolic monitoring in the pediatric intensive care unit. Nutr Clin Pract. 2014 Jun; 29(3):338-47. PMID: 24699395.
    Citations: 1     Fields:    Translation:Humans
  33. Graham RJ, Rodday AM, Parsons SK. Family-centered assessment and function for children with chronic mechanical respiratory support. J Pediatr Health Care. 2014 Jul-Aug; 28(4):295-304. PMID: 23942254.
    Citations: 3     Fields:    Translation:Humans
  34. Graham RJ. Long-term ventilation: charting a pathway home. Arch Dis Child. 2013 Sep; 98(9):653. PMID: 23868915.
    Citations:    Fields:    Translation:Humans
  35. LaRovere KL, Graham RJ, Tasker RC. Pediatric neurocritical care: a neurology consultation model and implication for education and training. Pediatr Neurol. 2013 Mar; 48(3):206-11. PMID: 23419471.
    Citations: 7     Fields:    Translation:Humans
  36. Edwards JD, Houtrow AJ, Vasilevskis EE, Rehm RS, Markovitz BP, Graham RJ, Dudley RA. Chronic conditions among children admitted to U.S. pediatric intensive care units: their prevalence and impact on risk for mortality and prolonged length of stay*. Crit Care Med. 2012 Jul; 40(7):2196-203. PMID: 22564961.
    Citations: 28     Fields:    Translation:Humans
  37. Edwards JD, Kun SS, Graham RJ, Keens TG. End-of-life discussions and advance care planning for children on long-term assisted ventilation with life-limiting conditions. J Palliat Care. 2012; 28(1):21-7. PMID: 22582468.
    Citations: 3     Fields:    Translation:Humans
  38. Puri AS, Rahbar R, Dearden J, Graham RJ, Lillehei C, Orbach DB. Stretched and sheared microcatheter retained after onyx embolization of infantile myofibromatosis. Interv Neuroradiol. 2011 Jun; 17(2):261-6. PMID: 21696669.
    Citations: 3     Fields:    Translation:Humans
  39. Edwards JD, Davidson EJ, Houtrow AJ, Graham RJ. Pediatric resident attitudes toward caring for children with severe disabilities. Am J Phys Med Rehabil. 2010 Sep; 89(9):765-71. PMID: 20729653.
    Citations:    Fields:    Translation:Humans
  40. Berry JG, Graham RJ, Roberson DW, Rhein L, Graham DA, Zhou J, O'Brien J, Putney H, Goldmann DA. Patient characteristics associated with in-hospital mortality in children following tracheotomy. Arch Dis Child. 2010 Sep; 95(9):703-10. PMID: 20522454.
    Citations: 14     Fields:    Translation:Humans
  41. Berry JG, Graham DA, Graham RJ, Zhou J, Putney HL, O'Brien JE, Roberson DW, Goldmann DA. Predictors of clinical outcomes and hospital resource use of children after tracheotomy. Pediatrics. 2009 Aug; 124(2):563-72. PMID: 19596736.
    Citations: 27     Fields:    Translation:Humans
  42. Graham RJ, Athiraman U, Laubach AE, Sethna NF. Anesthesia and perioperative medical management of children with spinal muscular atrophy. Paediatr Anaesth. 2009 Nov; 19(11):1054-63. PMID: 19558636.
    Citations: 2     Fields:    Translation:Humans
  43. Graham RJ, Pemstein DM, Curley MA. Experiencing the pediatric intensive care unit: perspective from parents of children with severe antecedent disabilities. Crit Care Med. 2009 Jun; 37(6):2064-70. PMID: 19384200.
    Citations: 8     Fields:    Translation:Humans
  44. Graham RJ, Wachendorf MT, Burns JP, Mancuso TJ. Successful and safe delivery of anesthesia and perioperative care for children with complex special health care needs. J Clin Anesth. 2009 May; 21(3):165-72. PMID: 19464608.
    Citations: 2     Fields:    Translation:Humans
  45. Graham RJ. Medicine and children with special health care needs: conflict with the cult of cure. J Dev Behav Pediatr. 2008 Aug; 29(4):309-10. PMID: 18698193.
    Citations:    Fields:    Translation:Humans
  46. Jay Berry Robert Graham Dionne Graham. Clinical Outcomes and Hospital Use of Children Following Tracheostomy. Pediatric Academic Societies. 2008.
  47. Graham RJ, Pemstein DM, Palfrey JS. Included but isolated: early intervention programmes provision for children and families with chronic respiratory support needs. Child Care Health Dev. 2008 May; 34(3):373-9. PMID: 18410643.
    Citations: 2     Fields:    Translation:Humans
  48. Graham RJ. Specialty services for children with special health care needs: supplement not supplant the medical home. Arch Dis Child. 2008 Jan; 93(1):2-4. PMID: 17942589.
    Citations: 1     Fields:    Translation:Humans
  49. Graham RJ, Fleegler EW, Robinson WM. Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts. Pediatrics. 2007 Jun; 119(6):e1280-7. PMID: 17485451.
    Citations: 18     Fields:    Translation:Humans
  50. Graham RJ, Stein P. Gastric outlet obstruction in an infant: lactobezoar. Am J Emerg Med. 2007 Jan; 25(1):98-9. PMID: 17157697.
    Citations: 2     Fields:    Translation:Humans
  51. O'Brien JE, Birnkrant DJ, Dumas HM, Haley SM, Burke SA, Graham RJ, Kharasch VS. Weaning children from mechanical ventilation in a post-acute care setting. Pediatr Rehabil. 2006 Oct-Dec; 9(4):365-72. PMID: 17111562.
    Citations: 1     Fields:    Translation:Humans
  52. The informed patient (column - Laura Landro): Pediatric hospitals teach doctors ways to convey tragic news. Cited in article. Wall Street Journal. 2006.
  53. Jeff Edwards, MD, MA, Emily J. Davidson, MD, MPH, Robert J. Graham, MD. Resident Attitudes Toward Caring for Children with Severe Disabilities. 2006.
  54. Graham RJ. Acute respiratory distress syndrome in children with severe motor and intellectual disabilities. Brain Dev. 2006 Jun; 28(5):342. PMID: 16478654.
    Citations:    Fields:    Translation:Humans
  55. Graham R Dussel V Wolfe J. Research. Oxford Textbook of Palliative Care for Children, Goldman A, Hain R, Liben S (eds). 2006; 615-647.
  56. Graham RJ, Robinson WM. Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities. J Dev Behav Pediatr. 2005 Oct; 26(5):361-5. PMID: 16222176.
    Citations: 4     Fields:    Translation:Humans
  57. Graham RJ. An opportunity: critical care beyond the intensive care unit. Pediatr Crit Care Med. 2005 May; 6(3):327-8. PMID: 15857533.
    Citations: 1     Fields:    Translation:Humans
  58. Graham RJ. Jading. Pediatr Crit Care Med. 2005 Jan; 6(1):93; author reply 93. PMID: 15643310.
    Citations:    Fields:    Translation:Humans
  59. O'Brien JE, Graham RJ, Dumas HM, and Kjarasch VS. Inpatient pediatric pulmonary rehabilitation: development of a minimum data set. Advance for Directors in Rehabilitation. 2005; 14(2):57-68.
  60. Graham RJ, Dumas HM, O'Brien JE, Burns JP. Congenital neurodevelopmental diagnoses and an intensive care unit: defining a population. Pediatr Crit Care Med. 2004 Jul; 5(4):321-8. PMID: 15215000.
    Citations: 8     Fields:    Translation:Humans
  61. Haley SM, Graham RJ, Dumas HM. Outcome rating scales for pediatric head injury. J Intensive Care Med. 2004 Jul-Aug; 19(4):205-19. PMID: 15296621.
    Citations: 1     Fields:    Translation:Humans
  62. Tracy Magee PhD, CPNP, RN, Robert J. Graham MD, Jane E O'Brien MD, Stephen M. Haley PhD, Helene M. Dumas MS, Virginia S. Kharasch MD. Developing a pediatric pulmonary multidisciplinary data set: meeting everyone's needs, clinician, patient, and researcher. 2004.
  63. Graham R. Evidence-based medicine, predictive model review of Robertson CMT, Joffe AR, Moore AJ, Watt JM. Neurodevelopmental outcome of young pediatric intensive care survivors of serious brain injury. (Pediatric Critical Care Medicine 2002; 3(4):345-350) http://pedsccm.wustl.edu/EBJournal_club.html. 2003.
  64. Randolph AG and Graham R. Measuring the health status of pediatric ICU survivors. Surviving Intensive Care. 2003; 107-115.
  65. Graham R. Evidence-based medicine, predictive models review of Hatherill M, McIntyre AG, Wattie M, Murdoch IA. Early hyperlactatemia in critically ill children. (Intensive Care Medicine 2000; 26:314-318) http://pedsccm.wustl.edu/EBJournal_club.html. 2001.
  66. Graham R. Evidence-based medicine, quality of life review of Sheridan RL et al. Longterm outcomes of children surviving massive burns (JAMA 2000; 283:69-73) http://pedsccm.wustl.edu/EBJournal_club.html. 2001.
  67. Babl, FE and Graham R. A pain in the heel: sneaker puncture wounds. Infectious Diseases in Children. 1999; 12(2):32.
  68. Peacock WJ and Graham R. Advances in pediatric neurosurgery - surgical management of epileptic surgery. Headlines. 1993; 12-14.
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Funded by the NIH National Center for Advancing Translational Sciences through its Clinical and Translational Science Awards Program, grant number UL1TR002541.