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Joanne Wolfe, M.D.

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Mentoring

Research
The research activities and funding listed below are automatically derived from NIH ExPORTER and other sources, which might result in incorrect or missing items. Faculty can login to make corrections and additions.
  1. R01NR016720 (WOLFE, JOANNE) Jun 8, 2017 - Mar 31, 2022
    NIH/NINR
    PediQUEST: Improving Children's Quality of Life through e-PROMS and Palliative Care
    Role: Principal Investigator
  2. R01NR016223 (FEUDTNER, JOHN CHRIS) Sep 15, 2016 - May 31, 2021
    NIH/NINR
    Pediatric Palliative Care Research Network SHARE Project
    Role: Co-Principal Investigator
  3. K07CA096746 (WOLFE, JOANNE) Aug 1, 2002 - Jun 30, 2008
    NIH/NCI
    Improving Care for Children with Advanced Cancer
    Role: Principal Investigator
  4. K08HL003503 (LEVY, JOANNE E) Aug 1, 1996 - Sep 30, 2001
    NIH/NHLBI
    TRANSFERRIN RECEPTOR AND ERYTHROPOIESIS
    Role: Co-Principal Investigator

Bibliographic
Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
  1. Snaman JM, Feraco AM, Wolfe J, Baker JN. "What if?": Addressing uncertainty with families. Pediatr Blood Cancer. 2019 Jun; 66(6):e27699. PMID: 30848085.
    Citations:    
  2. Rosenberg AR, Bona K, Coker T, Feudtner C, Houston K, Ibrahim A, Macauley R, Wolfe J, Hays R. Pediatric Palliative Care in the Multicultural Context: Findings From a Workshop Conference. J Pain Symptom Manage. 2019 Apr; 57(4):846-855.e2. PMID: 30685496.
    Citations:    Fields:    
  3. DeCourcey DD, Silverman M, Oladunjoye A, Wolfe J. Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions. Crit Care Med. 2019 Jan; 47(1):101-108. PMID: 30303834.
    Citations:    Fields:    
  4. Zernikow B, Szybalski K, Hübner-Möhler B, Wager J, Paulussen M, Lassay L, Jorch N, Weber C, Schneider DT, Janßen G, Oommen PT, Kuhlen M, Brune T, Wieland R, Schündeln M, Kremens B, Längler A, Prokop A, Kiener R, Niehues T, Rose M, Baumann-Köhler M, Pöppelmann M, Thorer H, Irnich M, Sinha K, Wolfe J, Schmidt P. Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period. Palliat Med. 2019 03; 33(3):381-391. PMID: 30537890.
    Citations:    Fields:    
  5. Snaman JM, Blazin L, Holder RL, Wolfe J, Baker JN. Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool. J Adolesc Young Adult Oncol. 2019 Apr; 8(2):212-216. PMID: 30362893.
    Citations:    Fields:    
  6. Feraco AM, Wolfe J. Integrating palliative and oncology care: paediatric considerations. Lancet Oncol. 2018 11; 19(11):e572-e573. PMID: 30344073.
    Citations:    Fields:    
  7. Jordan M, Keefer PM, Lee YA, Meade K, Snaman JM, Wolfe J, Kamal A, Rosenberg A. Top Ten Tips Palliative Care Clinicians Should Know About Caring for Children. J Palliat Med. 2018 Dec; 21(12):1783-1789. PMID: 30289325.
    Citations:    Fields:    
  8. Rosenberg AR, Bradford MC, Barton KS, Etsekson N, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP. Hope and benefit finding: Results from the PRISM randomized controlled trial. Pediatr Blood Cancer. 2019 Jan; 66(1):e27485. PMID: 30270489.
    Citations:    Fields:    
  9. Rosenberg AR, Bradford MC, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP. Promoting resilience in adolescents and young adults with cancer: Results from the PRISM randomized controlled trial. Cancer. 2018 Oct 01; 124(19):3909-3917. PMID: 30230531.
    Citations: 1     Fields:    
  10. Ullrich CK, Dussel V, Orellana L, Kang TI, Rosenberg AR, Feudtner C, Wolfe J. Self-reported fatigue in children with advanced cancer: Results of the PediQUEST study. Cancer. 2018 Sep 15; 124(18):3776-3783. PMID: 30291811.
    Citations:    Fields:    
  11. Ilowite MF, Al-Sayegh H, Ma C, Dussel V, Rosenberg AR, Feudtner C, Kang TI, Wolfe J, Bona K. The relationship between household income and patient-reported symptom distress and quality of life in children with advanced cancer: A report from the PediQUEST study. Cancer. 2018 Oct 01; 124(19):3934-3941. PMID: 30216416.
    Citations:    Fields:    
  12. Brock KE, Wolfe J, Ullrich C. From the Child's Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care. Children (Basel). 2018 Mar 28; 5(4). PMID: 29597333.
    Citations: 1     
  13. Feraco AM, Brand SR, Gagne J, Sullivan A, Block SD, Wolfe J. Development of the "Day 100 Talk": Addressing existing communication gaps during the early cancer treatment period in childhood cancer. Pediatr Blood Cancer. 2018 06; 65(6):e26972. PMID: 29384265.
    Citations:    Fields:    
  14. Widger K, Sutradhar R, Rapoport A, Vadeboncoeur C, Zelcer S, Kassam A, Nelson K, Liu Y, Wolfe J, Earle CC, Pole JD, Gupta S. Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With Cancer. J Clin Oncol. 2018 Mar 10; 36(8):801-807. PMID: 29356606.
    Citations: 1     Fields:    
  15. Ananth P, Ma C, Al-Sayegh H, Kroon L, Klein V, Wharton C, Hallez E, Braun I, Michelson K, Rosenberg AR, London W, Wolfe J. Provider Perspectives on Use of Medical Marijuana in Children With Cancer. Pediatrics. 2018 01; 141(1). PMID: 29233937.
    Citations: 2     Fields:    Translation:Humans
  16. DeCourcey DD, Silverman M, Oladunjoye A, Balkin EM, Wolfe J. Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions. J Pediatr. 2018 02; 193:196-203.e2. PMID: 29174080.
    Citations: 1     Fields:    
  17. Rosenberg AR, Orellana L, Wolfe J, Dussel V. The Limitations of "How Are You Feeling?" J Pain Symptom Manage. 2018 03; 55(3):e6-e8. PMID: 29169994.
    Citations:    Fields:    
  18. Rosenberg AR, Bradford MC, Bona K, Shaffer ML, Wolfe J, Baker KS, Lau N, Yi-Frazier J. Hope, distress, and later quality of life among adolescent and young adults with cancer. J Psychosoc Oncol. 2018 Mar-Apr; 36(2):137-144. PMID: 28934026.
    Citations: 2     Fields:    
  19. Feraco AM, Wolfe J. Discussions Across Disagreement: The Role for Simulation. J Palliat Med. 2017 10; 20(10):1050-1051. PMID: 28957031.
    Citations:    Fields:    
  20. Bilodeau M, Ma C, Al-Sayegh H, Wolfe J, Bona K. Household material hardship in families of children post-chemotherapy. Pediatr Blood Cancer. 2018 Jan; 65(1). PMID: 28941160.
    Citations:    Fields:    Translation:HumansCTClinical Trials
  21. Ananth P, Reed-Weston A, Wolfe J. Medical marijuana in pediatric oncology: A review of the evidence and implications for practice. Pediatr Blood Cancer. 2018 Feb; 65(2). PMID: 28926679.
    Citations:    Fields:    Translation:Humans
  22. Marron JM, Jones E, Wolfe J. Is There Ever a Role for the Unilateral Do Not Attempt Resuscitation Order in Pediatric Care? J Pain Symptom Manage. 2018 01; 55(1):164-171. PMID: 28916293.
    Citations:    Fields:    Translation:Humans
  23. Marcus KL, Balkin EM, Al-Sayegh H, Guslits E, Blume ED, Ma C, Wolfe J. Patterns and Outcomes of Care in Children With Advanced Heart Disease Receiving Palliative Care Consultation. J Pain Symptom Manage. 2018 02; 55(2):351-358. PMID: 28887267.
    Citations:    Fields:    
  24. Levine DR, Baker JN, Wolfe J, Lehmann LE, Ullrich C. Strange Bedfellows No More: How Integrated Stem-Cell Transplantation and Palliative Care Programs Can Together Improve End-of-Life Care. J Oncol Pract. 2017 09; 13(9):569-577. PMID: 28898603.
    Citations:    Fields:    Translation:Humans
  25. Ananth P, Monsereenusorn C, Ma C, Al-Sayegh H, Wolfe J, Rodriguez-Galindo C. Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer. Pediatr Blood Cancer. 2018 Jan; 65(1). PMID: 28771913.
    Citations:    Fields:    Translation:HumansCTClinical Trials
  26. Rosenberg AR, Wolfe J. Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions. Lancet Child Adolesc Health. 2017 Sep; 1(1):56-67. PMID: 29333484.
    Citations: 2     
  27. Balkin EM, Kirkpatrick JN, Kaufman B, Swetz KM, Sleeper LA, Wolfe J, Blume ED. Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study. Pediatr Cardiol. 2017 Oct; 38(7):1324-1331. PMID: 28664445.
    Citations:    Fields:    Translation:Humans
  28. Widger K, Vadeboncoeur C, Zelcer S, Liu Y, Kassam A, Sutradhar R, Rapoport A, Nelson K, Wolfe J, Earle C, Pole JD, Gupta S. The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, Canada. J Palliat Med. 2017 Nov; 20(11):1210-1216. PMID: 28595025.
    Citations:    Fields:    Translation:Humans
  29. Sisk BA, DuBois J, Kodish E, Wolfe J, Feudtner C. Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree. Pediatrics. 2017 Jun; 139(6). PMID: 28562285.
    Citations: 2     Fields:    Translation:Humans
  30. Straehla JP, Barton KS, Yi-Frazier JP, Wharton C, Baker KS, Bona K, Wolfe J, Rosenberg AR. The Benefits and Burdens of Cancer: A Prospective Longitudinal Cohort Study of Adolescents and Young Adults. J Palliat Med. 2017 05; 20(5):494-501. PMID: 28051888.
    Citations: 5     Fields:    Translation:Humans
  31. Feraco AM, Dussel V, Orellana L, Kang TI, Geyer JR, Rosenberg AR, Feudtner C, Wolfe J. Tumor Talk and Child Well-Being: Perceptions of "Good" and "Bad" News Among Parents of Children With Advanced Cancer. J Pain Symptom Manage. 2017 05; 53(5):833-841. PMID: 28062345.
    Citations: 1     Fields:    Translation:Humans
  32. Brand S, Wolfe J, Samsel C. The Impact of Cancer and its Treatment on the Growth and Development of the Pediatric Patient. Curr Pediatr Rev. 2017; 13(1):24-33. PMID: 27848890.
    Citations:    Fields:    Translation:Humans
  33. Rosenberg AR, Wolfe J, Wiener L, Lyon M, Feudtner C. Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review. JAMA Pediatr. 2016 12 01; 170(12):1216-1223. PMID: 27749945.
    Citations: 1     Fields:    Translation:Humans
  34. Kassam A, Sutradhar R, Widger K, Rapoport A, Pole JD, Nelson K, Wolfe J, Earle CC, Gupta S. Predictors of and Trends in High-Intensity End-of-Life Care Among Children With Cancer: A Population-Based Study Using Health Services Data. J Clin Oncol. 2017 Jan 10; 35(2):236-242. PMID: 28056201.
    Citations: 4     Fields:    Translation:Humans
  35. Rosenberg AR, Bona K, Ketterl T, Wharton CM, Wolfe J, Baker KS. Intimacy, Substance Use, and Communication Needs During Cancer Therapy: A Report From the "Resilience in Adolescents and Young Adults" Study. J Adolesc Health. 2017 01; 60(1):93-99. PMID: 27769762.
    Citations: 3     Fields:    Translation:Humans
  36. Monsereenusorn C, Ma C, Al-Sayegh H, Wolfe J, Rodriguez-Galindo C. Influence of early-phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer. J Clin Oncol. 2016 Oct 09; 34(26_suppl):151. PMID: 28156496.
    Citations:    
  37. Shutske K, Yi-Frazier JP, Wharton CM, Baker KS, Bona KO, Wolfe J, Rosenberg AR. The benefits and burdens of cancer: A prospective, longitudinal cohort study of adolescents and young adults. J Clin Oncol. 2016 Oct 09; 34(26_suppl):243. PMID: 28156534.
    Citations:    
  38. Sisk BA, Bluebond-Langner M, Wiener L, Mack J, Wolfe J. Prognostic Disclosures to Children: A Historical Perspective. Pediatrics. 2016 09; 138(3). PMID: 27561728.
    Citations: 3     Fields:    Translation:Humans
  39. Muriel AC, Wolfe J, Block SD. Pediatric Palliative Care and Child Psychiatry: A Model for Enhancing Practice and Collaboration. J Palliat Med. 2016 Oct; 19(10):1032-1038. PMID: 27551812.
    Citations:    Fields:    
  40. Rosenberg AR, Orellana L, Ullrich C, Kang T, Geyer JR, Feudtner C, Dussel V, Wolfe J. Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study. J Pain Symptom Manage. 2016 08; 52(2):243-53. PMID: 27220948.
    Citations: 7     Fields:    Translation:Humans
  41. Kirch R, Reaman G, Feudtner C, Wiener L, Schwartz LA, Sung L, Wolfe J. Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps. CA Cancer J Clin. 2016 09; 66(5):398-407. PMID: 27145249.
    Citations: 1     Fields:    Translation:Humans
  42. Bona K, Blonquist TM, Neuberg DS, Silverman LB, Wolfe J. Impact of Socioeconomic Status on Timing of Relapse and Overall Survival for Children Treated on Dana-Farber Cancer Institute ALL Consortium Protocols (2000-2010). Pediatr Blood Cancer. 2016 Jun; 63(6):1012-8. PMID: 26913850.
    Citations: 9     Fields:    Translation:Humans
  43. Ullrich CK, Lehmann L, London WB, Guo D, Sridharan M, Koch R, Wolfe J. End-of-Life Care Patterns Associated with Pediatric Palliative Care among Children Who Underwent Hematopoietic Stem Cell Transplant. Biol Blood Marrow Transplant. 2016 06; 22(6):1049-1055. PMID: 26903381.
    Citations: 8     Fields:    Translation:Humans
  44. Odejide OO, Cronin AM, Condron N, Earle CC, Wolfe J, Abel GA. Timeliness of End-of-Life Discussions for Blood Cancers: A National Survey of Hematologic Oncologists. JAMA Intern Med. 2016 Feb; 176(2):263-5. PMID: 26720644.
    Citations: 3     Fields:    Translation:Humans
  45. Feraco AM, Brand SR, Mack JW, Kesselheim JC, Block SD, Wolfe J. Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016 Jun; 63(6):966-72. PMID: 26822066.
    Citations: 3     Fields:    Translation:Humans
  46. Widger K, Friedrichsdorf S, Wolfe J, Liben S, Pole JD, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock JA, Rapoport A. Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer. BMC Palliat Care. 2016 Jan 27; 15:12. PMID: 26818836.
    Citations: 3     Fields:    Translation:Humans
  47. Rosenberg AR, Bona K, Wharton CM, Bradford M, Shaffer ML, Wolfe J, Baker KS. Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: A Report From the "Resilience in Adolescents and Young Adults With Cancer" Study. Pediatr Blood Cancer. 2016 Apr; 63(4):734-6. PMID: 26681427.
    Citations: 10     Fields:    Translation:Humans
  48. Weaver MS, Heinze KE, Kelly KP, Wiener L, Casey RL, Bell CJ, Wolfe J, Garee AM, Watson A, Hinds PS. Palliative Care as a Standard of Care in Pediatric Oncology. Pediatr Blood Cancer. 2015 Dec; 62 Suppl 5:S829-33. PMID: 26700928.
    Citations: 12     Fields:    Translation:Humans
  49. Ananth P, Melvin P, Feudtner C, Wolfe J, Berry JG. Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions. Pediatrics. 2015 Nov; 136(5):938-46. PMID: 26438707.
    Citations: 5     Fields:    Translation:Humans
  50. Bona K, London WB, Guo D, Frank DA, Wolfe J. Trajectory of Material Hardship and Income Poverty in Families of Children Undergoing Chemotherapy: A Prospective Cohort Study. Pediatr Blood Cancer. 2016 Jan; 63(1):105-11. PMID: 26398865.
    Citations: 5     Fields:    Translation:Humans
  51. Ullrich CK, Rodday AM, Bingen K, Kupst MJ, Patel SK, Syrjala KL, Harris LL, Recklitis CJ, Schwartz L, Davies S, Guinan EC, Chang G, Wolfe J, Parsons SK. Parent Outlook: How Parents View the Road Ahead as They Embark on Hematopoietic Stem Cell Transplantation for Their Child. Biol Blood Marrow Transplant. 2016 Jan; 22(1):104-11. PMID: 26348891.
    Citations:    Fields:    Translation:HumansCTClinical Trials
  52. Wiener L, Feudtner C, Hinds P, Wolfe J, Mack J. Deeper Conversations Need Not Wait Until the End. J Clin Oncol. 2015 Nov 20; 33(33):3974. PMID: 26282649.
    Citations: 1     Fields:    Translation:Humans
  53. Madden K, Wolfe J, Collura C. Pediatric Palliative Care in the Intensive Care Unit. Crit Care Nurs Clin North Am. 2015 Sep; 27(3):341-54. PMID: 26333755.
    Citations:    Fields:    Translation:Humans
  54. Baker JN, Levine DR, Hinds PS, Weaver MS, Cunningham MJ, Johnson L, Anghelescu D, Mandrell B, Gibson DV, Jones B, Wolfe J, Feudtner C, Friebert S, Carter B, Kane JR. Research Priorities in Pediatric Palliative Care. J Pediatr. 2015 Aug; 167(2):467-70.e3. PMID: 26028284.
    Citations: 6     Fields:    Translation:Humans
  55. Wolfe J, Orellana L, Ullrich C, Cook EF, Kang TI, Rosenberg A, Geyer R, Feudtner C, Dussel V. Symptoms and Distress in Children With Advanced Cancer: Prospective Patient-Reported Outcomes From the PediQUEST Study. J Clin Oncol. 2015 Jun 10; 33(17):1928-35. PMID: 25918277.
    Citations: 14     Fields:    Translation:Humans
  56. Kassam A, Skiadaresis J, Alexander S, Wolfe J. Differences in end-of-life communication for children with advanced cancer who were referred to a palliative care team. Pediatr Blood Cancer. 2015 Aug; 62(8):1409-13. PMID: 25882665.
    Citations: 11     Fields:    Translation:Humans
  57. Rosenberg AR, Wolfe J. Authors' response to van der Geest et al. J Pain Symptom Manage. 2015 May; 49(5):e7-9. PMID: 25757836.
    Citations:    Fields:    Translation:Humans
  58. Dussel V, Orellana L, Soto N, Chen K, Ullrich C, Kang TI, Geyer JR, Feudtner C, Wolfe J. Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study. J Pain Symptom Manage. 2015 Jun; 49(6):1059-69. PMID: 25640275.
    Citations: 4     Fields:    Translation:Humans
  59. Balkin EM, Wolfe J, Ziniel SI, Lang P, Thiagarajan R, Dillis S, Fynn-Thompson F, Blume ED. Physician and parent perceptions of prognosis and end-of-life experience in children with advanced heart disease. J Palliat Med. 2015 Apr; 18(4):318-23. PMID: 25493354.
    Citations: 2     Fields:    Translation:Humans
  60. Friedrichsdorf SJ, Postier A, Dreyfus J, Osenga K, Sencer S, Wolfe J. Improved quality of life at end of life related to home-based palliative care in children with cancer. J Palliat Med. 2015 Feb; 18(2):143-50. PMID: 25401507.
    Citations: 11     Fields:    Translation:Humans
  61. Bona K, London WB, Guo D, Abel G, Lehmann L, Wolfe J. Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biol Blood Marrow Transplant. 2015 Feb; 21(2):312-8. PMID: 25445021.
    Citations: 4     Fields:    Translation:Humans
  62. Rosenberg AR, Orellana L, Kang TI, Geyer JR, Feudtner C, Dussel V, Wolfe J. Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer. J Clin Oncol. 2014 Sep 20; 32(27):3005-11. PMID: 25024073.
    Citations: 7     Fields:    Translation:Humans
  63. Hauer JM, Wolfe J. Supportive and palliative care of children with metabolic and neurological diseases. Curr Opin Support Palliat Care. 2014 Sep; 8(3):296-302. PMID: 25004174.
    Citations: 6     Fields:    Translation:Humans
  64. Ullrich CK, Wolfe J. Caring for children living with life-threatening illness: a growing relationship between pediatric hospital medicine and pediatric palliative care. Pediatr Clin North Am. 2014 Aug; 61(4):xxi-xxiii. PMID: 25084730.
    Citations:    Fields:    Translation:Humans
  65. Rosenberg AR, Postier A, Osenga K, Kreicbergs U, Neville B, Dussel V, Wolfe J. Long-term psychosocial outcomes among bereaved siblings of children with cancer. J Pain Symptom Manage. 2015 Jan; 49(1):55-65. PMID: 24880001.
    Citations: 10     Fields:    Translation:Humans
  66. Rosenberg AR, Dussel V, Orellana L, Kang T, Geyer JR, Feudtner C, Wolfe J. What's missing in missing data? Omissions in survey responses among parents of children with advanced cancer. J Palliat Med. 2014 Aug; 17(8):953-6. PMID: 24865204.
    Citations: 2     Fields:    Translation:Humans
  67. Blume ED, Balkin EM, Aiyagari R, Ziniel S, Beke DM, Thiagarajan R, Taylor L, Kulik T, Pituch K, Wolfe J. Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study*. Pediatr Crit Care Med. 2014 May; 15(4):336-42. PMID: 24583501.
    Citations: 8     Fields:    Translation:Humans
  68. Wolfe J, Orellana L, Cook EF, Ullrich C, Kang T, Geyer JR, Feudtner C, Weeks JC, Dussel V. Improving the care of children with advanced cancer by using an electronic patient-reported feedback intervention: results from the PediQUEST randomized controlled trial. J Clin Oncol. 2014 Apr 10; 32(11):1119-26. PMID: 24616307.
    Citations: 19     Fields:    Translation:Humans
  69. Kassam A, Skiadaresis J, Alexander S, Wolfe J. Parent and clinician preferences for location of end-of-life care: home, hospital or freestanding hospice? Pediatr Blood Cancer. 2014 May; 61(5):859-64. PMID: 24265171.
    Citations: 7     Fields:    Translation:Humans
  70. Rosenberg AR, Wolfe J, Bradford MC, Shaffer ML, Yi-Frazier JP, Curtis JR, Syrjala KL, Baker KS. Resilience and psychosocial outcomes in parents of children with cancer. Pediatr Blood Cancer. 2014 Mar; 61(3):552-7. PMID: 24249426.
    Citations: 13     Fields:    Translation:Humans
  71. Feudtner C, Womer J, Augustin R, Remke S, Wolfe J, Friebert S, Weissman D. Pediatric palliative care programs in children's hospitals: a cross-sectional national survey. Pediatrics. 2013 Dec; 132(6):1063-70. PMID: 24190689.
    Citations: 13     Fields:    Translation:Humans
  72. Sanderson A, Zurakowski D, Wolfe J. Clinician perspectives regarding the do-not-resuscitate order. JAMA Pediatr. 2013 Oct; 167(10):954-8. PMID: 23979224.
    Citations: 6     Fields:    Translation:Humans
  73. Schmidt P, Otto M, Hechler T, Metzing S, Wolfe J, Zernikow B. Did increased availability of pediatric palliative care lead to improved palliative care outcomes in children with cancer? J Palliat Med. 2013 Sep; 16(9):1034-9. PMID: 23901834.
    Citations: 9     Fields:    Translation:Humans
  74. Kassam A, Wolfe J. Reply to A.H. Kamal. J Clin Oncol. 2013 Aug 20; 31(24):3047-8. PMID: 23943830.
    Citations:    Fields:    Translation:Humans
  75. Bona K, Dussel V, Orellana L, Kang T, Geyer R, Feudtner C, Wolfe J. Economic impact of advanced pediatric cancer on families. J Pain Symptom Manage. 2014 Mar; 47(3):594-603. PMID: 23870843.
    Citations: 18     Fields:    Translation:Humans
  76. Rosenberg AR, Dussel V, Kang T, Geyer JR, Gerhardt CA, Feudtner C, Wolfe J. Psychological distress in parents of children with advanced cancer. JAMA Pediatr. 2013 Jun; 167(6):537-43. PMID: 23545569.
    Citations: 23     Fields:    Translation:Humans
  77. Rosenberg AR, Baker KS, Syrjala KL, Back AL, Wolfe J. Promoting resilience among parents and caregivers of children with cancer. J Palliat Med. 2013 Jun; 16(6):645-52. PMID: 23646887.
    Citations: 12     Fields:    Translation:Humans
  78. Waldman E, Wolfe J. High symptom burden in children with cancer and high parental satisfaction: why the disconnect? Ann Palliat Med. 2013 Apr; 2(2):54-5. PMID: 25841925.
    Citations:    Fields:    
  79. Rosenberg AR, Wolfe J. Palliative care for adolescents and young adults with cancer. Clin Oncol Adolesc Young Adults. 2013; 2013(3):41-48. PMID: 29657924.
    Citations:    
  80. Waldman E, Wolfe J. Palliative care for children with cancer. Nat Rev Clin Oncol. 2013 Feb; 10(2):100-7. PMID: 23337915.
    Citations: 14     Fields:    Translation:Humans
  81. Kassam A, Skiadaresis J, Habib S, Alexander S, Wolfe J. Moving toward quality palliative cancer care: parent and clinician perspectives on gaps between what matters and what is accessible. J Clin Oncol. 2013 Mar 01; 31(7):910-5. PMID: 23182989.
    Citations: 9     Fields:    Translation:Humans
  82. Heath JA, Oh LJ, Clarke NE, Wolfe J. Complementary and alternative medicine use in children with cancer at the end of life. J Palliat Med. 2012 Nov; 15(11):1218-21. PMID: 22908860.
    Citations: 6     Fields:    Translation:Humans
  83. Morell E, Wolfe J, Scheurer M, Thiagarajan R, Morin C, Beke DM, Smoot L, Cheng H, Gauvreau K, Blume ED. Patterns of care at end of life in children with advanced heart disease. Arch Pediatr Adolesc Med. 2012 Aug; 166(8):745-8. PMID: 22473887.
    Citations: 4     Fields:    Translation:Humans
  84. von Lützau P, Otto M, Hechler T, Metzing S, Wolfe J, Zernikow B. Children dying from cancer: parents' perspectives on symptoms, quality of life, characteristics of death, and end-of-life decisions. J Palliat Care. 2012; 28(4):274-81. PMID: 23413763.
    Citations: 11     Fields:    Translation:Humans
  85. Rosenberg AR, Baker KS, Syrjala K, Wolfe J. Systematic review of psychosocial morbidities among bereaved parents of children with cancer. Pediatr Blood Cancer. 2012 Apr; 58(4):503-12. PMID: 22038675.
    Citations: 16     Fields:    Translation:Humans
  86. Feudtner C, Kang TI, Hexem KR, Friedrichsdorf SJ, Osenga K, Siden H, Friebert SE, Hays RM, Dussel V, Wolfe J. Pediatric palliative care patients: a prospective multicenter cohort study. Pediatrics. 2011 Jun; 127(6):1094-101. PMID: 21555495.
    Citations: 46     Fields:    Translation:Humans
  87. Wolfe J. Recognizing a global need for high quality pediatric palliative care. Pediatr Blood Cancer. 2011 Aug; 57(2):187-8. PMID: 21495165.
    Citations: 5     Fields:    Translation:Humans
  88. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol. 2011 May 20; 29(15):2085-90. PMID: 21464400.
    Citations: 8     Fields:    Translation:Humans
  89. Dussel V, Neville B, Chen K, Cook E, Geyer R, Kang T, Ullrich C, Feudtner C, Weeks J, Wolfe J. Routine Feedback of Patient-Reported Distress in Children With Advanced Cancer: Provider and Family Satisfaction With the Pediatric Quality of Life and Evaluation of Symptoms Technology (PediQUEST) System (311-B). J Pain Symptom Manage. 2011 Jan; 41(1):187-8. PMID: 25305849.
    Citations:    
  90. Bona K, Bates J, Wolfe J. Successful implementation of a novel state-funded pediatric palliative care program (413-B). J Pain Symptom Manage. 2011 Jan; 41(1):230-1. PMID: 25305917.
    Citations:    
  91. Wolfe J, Dussel V, Neville B, Cook E, Chen K, Kang T, Geyer R, Ullrich C, Feudtner C, Weeks J. Longitudinal Assessment of Symptom Distress in Children with Advanced Cancer: Report of the First 20 Weeks in the Pediatric Quality-of-Life Evaluation of Symptoms Technology (PediQUEST) Study (311-A). J Pain Symptom Manage. 2011 Jan; 41(1):187. PMID: 25305848.
    Citations:    
  92. Dussel V, Bona K, Heath JA, Hilden JM, Weeks JC, Wolfe J. Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer. J Clin Oncol. 2011 Mar 10; 29(8):1007-13. PMID: 21205758.
    Citations: 11     Fields:    Translation:Humans
  93. Ullrich CK, Dussel V, Hilden JM, Sheaffer JW, Moore CL, Berde CB, Wolfe J. Fatigue in children with cancer at the end of life. J Pain Symptom Manage. 2010 Oct; 40(4):483-94. PMID: 20678889.
    Citations: 7     Fields:    Translation:Humans
  94. Lannen P, Wolfe J, Mack J, Onelov E, Nyberg U, Kreicbergs U. Absorbing information about a child's incurable cancer. Oncology. 2010; 78(3-4):259-66. PMID: 20523086.
    Citations: 6     Fields:    Translation:Humans
  95. Ullrich CK, Dussel V, Hilden JM, Sheaffer JW, Lehmann L, Wolfe J. End-of-life experience of children undergoing stem cell transplantation for malignancy: parent and provider perspectives and patterns of care. Blood. 2010 May 13; 115(19):3879-85. PMID: 20228275.
    Citations: 20     Fields:    Translation:Humans
  96. Dussel V, Joffe S, Hilden JM, Watterson-Schaeffer J, Weeks JC, Wolfe J. Considerations about hastening death among parents of children who die of cancer. Arch Pediatr Adolesc Med. 2010 Mar; 164(3):231-7. PMID: 20194255.
    Citations: 5     Fields:    Translation:Humans
  97. Heath JA, Clarke NE, Donath SM, McCarthy M, Anderson VA, Wolfe J. Symptoms and suffering at the end of life in children with cancer: an Australian perspective. Med J Aust. 2010 Jan 18; 192(2):71-5. PMID: 20078405.
    Citations: 14     Fields:    Translation:Humans
  98. Heath JA, Clarke NE, McCarthy M, Donath SM, Anderson VA, Wolfe J. Quality of care at the end of life in children with cancer. J Paediatr Child Health. 2009 Nov; 45(11):656-9. PMID: 19903251.
    Citations: 6     Fields:    Translation:Humans
  99. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of mind and sense of purpose as core existential issues among parents of children with cancer. Arch Pediatr Adolesc Med. 2009 Jun; 163(6):519-24. PMID: 19487607.
    Citations: 5     Fields:    Translation:Humans
  100. Lannen PK, Wolfe J, Prigerson HG, Onelov E, Kreicbergs UC. Unresolved grief in a national sample of bereaved parents: impaired mental and physical health 4 to 9 years later. J Clin Oncol. 2008 Dec 20; 26(36):5870-6. PMID: 19029425.
    Citations: 23     Fields:    Translation:Humans
  101. Mack JW, Joffe S, Hilden JM, Watterson J, Moore C, Weeks JC, Wolfe J. Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol. 2008 Oct 10; 26(29):4759-64. PMID: 18779605.
    Citations: 17     Fields:    Translation:Humans
  102. Dussel V, Kreicbergs U, Hilden JM, Watterson J, Moore C, Turner BG, Weeks JC, Wolfe J. Looking beyond where children die: determinants and effects of planning a child's location of death. J Pain Symptom Manage. 2009 Jan; 37(1):33-43. PMID: 18538973.
    Citations: 30     Fields:    Translation:Humans
  103. Hechler T, Blankenburg M, Friedrichsdorf SJ, Garske D, Hübner B, Menke A, Wamsler C, Wolfe J, Zernikow B. Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer. Klin Padiatr. 2008 May-Jun; 220(3):166-74. PMID: 18478489.
    Citations: 19     Fields:    Translation:Humans
  104. Wolfe J, Hammel JF, Edwards KE, Duncan J, Comeau M, Breyer J, Aldridge SA, Grier HE, Berde C, Dussel V, Weeks JC. Easing of suffering in children with cancer at the end of life: is care changing? J Clin Oncol. 2008 Apr 01; 26(10):1717-23. PMID: 18375901.
    Citations: 44     Fields:    Translation:Humans
  105. Edwards KE, Neville BA, Cook EF, Aldridge SH, Dussel V, Wolfe J. Understanding of prognosis and goals of care among couples whose child died of cancer. J Clin Oncol. 2008 Mar 10; 26(8):1310-5. PMID: 18323555.
    Citations: 11     Fields:    Translation:Humans
  106. Liben S, Papadatou D, Wolfe J. Paediatric palliative care: challenges and emerging ideas. Lancet. 2008 Mar 08; 371(9615):852-64. PMID: 17707080.
    Citations: 29     Fields:    Translation:Humans
  107. Lannen P, Wolfe J, Prigerson HG, Onelöv E, Kreicbergs UC. . Unresolved Grief in a National Sample of Bereaved Parents. Journal of Clinical Oncology. In Press. 2008.
  108. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Hope and prognostic disclosure. J Clin Oncol. 2007 Dec 10; 25(35):5636-42. PMID: 18065734.
    Citations: 44     Fields:    Translation:Humans
  109. Duncan J, Spengler E, Wolfe J. Providing pediatric palliative care: PACT in action. MCN Am J Matern Child Nurs. 2007 Sep-Oct; 32(5):279-87. PMID: 17728588.
    Citations: 1     Fields:    Translation:Humans
  110. Kreicbergs UC, Lannen P, Onelov E, Wolfe J. Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes. J Clin Oncol. 2007 Aug 01; 25(22):3307-12. PMID: 17664479.
    Citations: 24     Fields:    Translation:Humans
  111. Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. J Clin Oncol. 2007 Apr 10; 25(11):1357-62. PMID: 17416854.
    Citations: 26     Fields:    Translation:Humans
  112. Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006 Nov 20; 24(33):5265-70. PMID: 17114660.
    Citations: 45     Fields:    Translation:Humans
  113. Sullivan AM, Lakoma MD, Billings JA, Peters AS, Block SD. Creating enduring change: demonstrating the long-term impact of a faculty development program in palliative care. J Gen Intern Med. 2006 Sep; 21(9):907-14. PMID: 16918733.
    Citations: 8     Fields:    Translation:Humans
  114. Mack JW, Wolfe J. Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis. Curr Opin Pediatr. 2006 Feb; 18(1):10-4. PMID: 16470155.
    Citations: 16     Fields:    Translation:Humans
  115. Mack JW, Hilden JM, Watterson J, Moore C, Turner B, Grier HE, Weeks JC, Wolfe J. Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol. 2005 Dec 20; 23(36):9155-61. PMID: 16172457.
    Citations: 41     Fields:    Translation:Humans
  116. Sullivan AM, Lakoma MD, Billings JA, Peters AS, Block SD. Teaching and learning end-of-life care: evaluation of a faculty development program in palliative care. Acad Med. 2005 Jul; 80(7):657-68. PMID: 15980082.
    Citations: 14     Fields:    Translation:Humans
  117. Hinds PS, Schum L, Baker JN, Wolfe J. Key factors affecting dying children and their families. J Palliat Med. 2005; 8 Suppl 1:S70-8. PMID: 16499471.
    Citations: 16     Fields:    Translation:Humans
  118. Hurwitz CA, Duncan J, Wolfe J. Caring for the child with cancer at the close of life: "there are people who make it, and I'm hoping I'm one of them". JAMA. 2004 Nov 03; 292(17):2141-9. PMID: 15523075.
    Citations: 11     Fields:    Translation:Humans
  119. Berde C, Wolfe J. Pain, anxiety, distress, and suffering: interrelated, but not interchangeable. J Pediatr. 2003 Apr; 142(4):361-3. PMID: 12712049.
    Citations: 3     Fields:    Translation:Humans
  120. Wolfe J, Friebert S, Hilden J. Caring for children with advanced cancer integrating palliative care. Pediatr Clin North Am. 2002 Oct; 49(5):1043-62. PMID: 12430625.
    Citations: 10     Fields:    Translation:Humans
  121. Wolfe J, Klar N, Grier HE, Duncan J, Salem-Schatz S, Emanuel EJ, Weeks JC. Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care. JAMA. 2000 Nov 15; 284(19):2469-75. PMID: 11074776.
    Citations: 69     Fields:    Translation:Humans
  122. Wolfe J, Grier HE, Klar N, Levin SB, Ellenbogen JM, Salem-Schatz S, Emanuel EJ, Weeks JC. Symptoms and suffering at the end of life in children with cancer. N Engl J Med. 2000 Feb 03; 342(5):326-33. PMID: 10655532.
    Citations: 109     Fields:    Translation:Humans
  123. Wolfe J. Suffering in children at the end of life: recognizing an ethical duty to palliate. J Clin Ethics. 2000; 11(2):157-63. PMID: 11056873.
    Citations: 2     Fields:    Translation:Humans
  124. Wolfe J, Fairclough DL, Clarridge BR, Daniels ER, Emanuel EJ. Stability of attitudes regarding physician-assisted suicide and euthanasia among oncology patients, physicians, and the general public. J Clin Oncol. 1999 Apr; 17(4):1274. PMID: 10561189.
    Citations: 5     Fields:    Translation:Humans
  125. Ruth AB, Wolfe J. An 11-year-old boy with severe liver disease, cyanosis, and clubbing. Curr Opin Pediatr. 1994 Jun; 6(3):280-5. PMID: 8061737.
    Citations:    Fields:    Translation:Humans
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Funded by the NIH/NCATS Clinical and Translational Science Award (CTSA) program, grant number UL1TR001102, and through institutional support from Harvard University, Harvard Medical School, Harvard T.H. Chan School of Public Health, Beth Israel Deaconess Medical Center, Boston Children's Hospital, Brigham and Women's Hospital, Massachusetts General Hospital and the Dana Farber Cancer Institute.