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Institution

Karen Alice Kuhlthau, PH.D.

TitleAssociate Professor of Pediatrics
InstitutionMassachusetts General Hospital
DepartmentPediatrics
AddressMassachusetts General Hospital
Department of Pediatrics
100 Cambridge Street, Room 1546
Boston MA 02114
Phone617/724-2842
Fax617/724-1886

 Bibliographic 
 selected publications
Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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  1. McAllister JW, Cooley WC, Van Cleave J, Boudreau AA, Kuhlthau K. Medical home transformation in pediatric primary care--what drives change? Ann Fam Med. 2013 May-Jun; 11 Suppl 1:S90-8.
    View in: PubMed
  2. Pulcini CD, Kotelchuck M, Kuhlthau KA, Nozzolillo AA, Perrin JM. Potential savings from redetermining disability among children receiving supplemental security income benefits. Acad Pediatr. 2012 Nov; 12(6):489-94.
    View in: PubMed
  3. Arauz Boudreau AD, Van Cleave JM, Gnanasekaran SK, Kurowski DS, Kuhlthau KA. The medical home: relationships with family functioning for children with and without special health care needs. Acad Pediatr. 2012 Sep-Oct; 12(5):391-8.
    View in: PubMed
  4. Tilford JM, Payakachat N, Kovacs E, Pyne JM, Brouwer W, Nick TG, Bellando J, Kuhlthau KA. Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: a comparison of generic instruments. Pharmacoeconomics. 2012 Aug 1; 30(8):661-79.
    View in: PubMed
  5. Payakachat N, Tilford JM, Kovacs E, Kuhlthau K. Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications. Expert Rev Pharmacoecon Outcomes Res. 2012 Aug; 12(4):485-503.
    View in: PubMed
  6. Kirchhoff AC, Kuhlthau K, Pajolek H, Leisenring W, Armstrong GT, Robison LL, Park ER. Employer-sponsored health insurance coverage limitations: results from the Childhood Cancer Survivor Study. Support Care Cancer. 2013 Feb; 21(2):377-83.
    View in: PubMed
  7. Park ER, Kirchhoff AC, Zallen JP, Weissman JS, Pajolek H, Mertens AC, Armstrong GT, Robison LL, Donelan K, Recklitis CJ, Diller LR, Kuhlthau KA. Childhood Cancer Survivor Study participants' perceptions and knowledge of health insurance coverage: implications for the Affordable Care Act. J Cancer Surviv. 2012 Sep; 6(3):251-9.
    View in: PubMed
  8. Van Cleave J, Kuhlthau KA, Bloom S, Newacheck PW, Nozzolillo AA, Homer CJ, Perrin JM. Interventions to improve screening and follow-up in primary care: a systematic review of the evidence. Acad Pediatr. 2012 Jul-Aug; 12(4):269-82.
    View in: PubMed
  9. Kuhlthau KA, Pulsifer MB, Yeap BY, Rivera Morales D, Delahaye J, Hill KS, Ebb D, Abrams AN, Macdonald SM, Tarbell NJ, Yock TI. Prospective study of health-related quality of life for children with brain tumors treated with proton radiotherapy. J Clin Oncol. 2012 Jun 10; 30(17):2079-86.
    View in: PubMed
  10. Houtrow AJ, Yock TI, Delahaye J, Kuhlthau K. The family impacts of proton radiation therapy for children with brain tumors. J Pediatr Oncol Nurs. 2012 May-Jun; 29(3):171-9.
    View in: PubMed
  11. Bloom SR, Kuhlthau K, Van Cleave J, Knapp AA, Newacheck P, Perrin JM. Health care transition for youth with special health care needs. J Adolesc Health. 2012 Sep; 51(3):213-9.
    View in: PubMed
  12. Kuo DZ, Houtrow AJ, Arango P, Kuhlthau KA, Simmons JM, Neff JM. Family-centered care: current applications and future directions in pediatric health care. Matern Child Health J. 2012 Feb; 16(2):297-305.
    View in: PubMed
  13. Katz ML, Laffel LM, Perrin JM, Kuhlthau K. Impact of type 1 diabetes mellitus on the family is reduced with the medical home, care coordination, and family-centered care. J Pediatr. 2012 May; 160(5):861-7.
    View in: PubMed
  14. Guzman MP, Jellinek M, George M, Hartley M, Squicciarini AM, Canenguez KM, Kuhlthau KA, Yucel R, White GW, Guzman J, Murphy JM. Mental health matters in elementary school: first-grade screening predicts fourth grade achievement test scores. Eur Child Adolesc Psychiatry. 2011 Aug; 20(8):401-11.
    View in: PubMed
  15. Kuhlthau KA. Measures of availability of health care services for children. Acad Pediatr. 2011 May-Jun; 11(3 Suppl):S42-8.
    View in: PubMed
  16. Kuhlthau K, Jellinek M, White G, Vancleave J, Simons J, Murphy M. Increases in behavioral health screening in pediatric care for Massachusetts Medicaid patients. Arch Pediatr Adolesc Med. 2011 Jul; 165(7):660-4.
    View in: PubMed
  17. Kuhlthau KA, Bloom S, Van Cleave J, Knapp AA, Romm D, Klatka K, Homer CJ, Newacheck PW, Perrin JM. Evidence for family-centered care for children with special health care needs: a systematic review. Acad Pediatr. 2011 Mar-Apr; 11(2):136-43.
    View in: PubMed
  18. Szilagyi PG, Kuhlthau KA. Children with special health care needs: a celebration of success! Acad Pediatr. 2011 Mar-Apr; 11(2):94-5.
    View in: PubMed
  19. Lipstein EA, Nabi E, Perrin JM, Luff D, Browning MF, Kuhlthau KA. Parents' decision-making in newborn screening: opinions, choices, and information needs. Pediatrics. 2010 Oct; 126(4):696-704.
    View in: PubMed
  20. Kuhlthau K, Orlich F, Hall TA, Sikora D, Kovacs EA, Delahaye J, Clemons TE. Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network. J Autism Dev Disord. 2010 Jun; 40(6):721-9.
    View in: PubMed
  21. Oreskovic NM, Kuhlthau KA, Laraque D, Serwint JR, Schuster MA. Health care reform for children: views from the Academic Pediatric Association. Acad Pediatr. 2010 May-Jun; 10(3):153-4.
    View in: PubMed
  22. Arauz Boudreau AD, Fluet CF, Reuland CP, Delahaye J, Perrin JM, Kuhlthau K. Associations of providers' language and cultural skills with Latino parents' perceptions of well-child care. Acad Pediatr. 2010 May-Jun; 10(3):172-8.
    View in: PubMed
  23. Isong IA, Zuckerman KE, Rao SR, Kuhlthau KA, Winickoff JP, Perrin JM. Association between parents' and children's use of oral health services. Pediatrics. 2010 Mar; 125(3):502-8.
    View in: PubMed
  24. Witt WP, Kahn R, Fortuna L, Winickoff J, Kuhlthau K, Pirraglia PA, Ferris T. Psychological distress as a barrier to preventive healthcare among U.S. women. J Prim Prev. 2009 Sep; 30(5):531-47.
    View in: PubMed
  25. Cooley WC, McAllister JW, Sherrieb K, Kuhlthau K. Improved outcomes associated with medical home implementation in pediatric primary care. Pediatrics. 2009 Jul; 124(1):358-64.
    View in: PubMed
  26. Oreskovic NM, Winickoff JP, Kuhlthau KA, Romm D, Perrin JM. Obesity and the built environment among Massachusetts children. Clin Pediatr (Phila). 2009 Nov; 48(9):904-12.
    View in: PubMed
  27. Oreskovic NM, Kuhlthau KA, Romm D, Perrin JM. Built environment and weight disparities among children in high- and low-income towns. Acad Pediatr. 2009 Sep-Oct; 9(5):315-21.
    View in: PubMed
  28. Newacheck PW, Houtrow AJ, Romm DL, Kuhlthau KA, Bloom SR, Van Cleave JM, Perrin JM. The future of health insurance for children with special health care needs. Pediatrics. 2009 May; 123(5):e940-7.
    View in: PubMed
  29. Wexler T, Gunnell L, Omer Z, Kuhlthau K, Beauregard C, Graham G, Utz AL, Biller B, Nachtigall L, Loeffler J, Swearingen B, Klibanski A, Miller KK. Growth hormone deficiency is associated with decreased quality of life in patients with prior acromegaly. J Clin Endocrinol Metab. 2009 Jul; 94(7):2471-7.
    View in: PubMed
  30. Zuckerman KE, Boudreau AA, Lipstein EA, Kuhlthau KA, Perrin JM. Household language, parent developmental concerns, and child risk for developmental disorder. Acad Pediatr. 2009 Mar-Apr; 9(2):97-105.
    View in: PubMed
  31. Lipstein EA, Perrin JM, Kuhlthau KA. School absenteeism, health status, and health care utilization among children with asthma: associations with parental chronic disease. Pediatrics. 2009 Jan; 123(1):e60-6.
    View in: PubMed
  32. Kuhlthau K, Kahn R, Hill KS, Gnanasekaran S, Ettner SL. The well-being of parental caregivers of children with activity limitations. Matern Child Health J. 2010 Mar; 14(2):155-63.
    View in: PubMed
  33. Gnanasekaran SK, Boudreau AA, Soobader MJ, Yucel R, Hill K, Kuhlthau K. State policy environment and delayed or forgone care among children with special health care needs. Matern Child Health J. 2008 Nov; 12(6):739-46.
    View in: PubMed
  34. Homer CJ, Klatka K, Romm D, Kuhlthau K, Bloom S, Newacheck P, Van Cleave J, Perrin JM. A review of the evidence for the medical home for children with special health care needs. Pediatrics. 2008 Oct; 122(4):e922-37.
    View in: PubMed
  35. Toomey SL, Finkelstein J, Kuhlthau K. Does connection to primary care matter for children with attention-deficit/hyperactivity disorder? Pediatrics. 2008 Aug; 122(2):368-74.
    View in: PubMed
  36. Tang MH, Hill KS, Boudreau AA, Yucel RM, Perrin JM, Kuhlthau KA. Medicaid managed care and the unmet need for mental health care among children with special health care needs. Health Serv Res. 2008 Jun; 43(3):882-900.
    View in: PubMed
  37. Kuhlthau K, Hill K, Fluet C, Meara E, Yucel RM. Correlates of therapy use and expenditures in children in the United States. Dev Neurorehabil. 2008 Apr-Jun; 11(2):115-23.
    View in: PubMed
  38. Perrin JM, Kuhlthau K, Chughtai A, Romm D, Kirschner BS, Ferry GD, Cohen SA, Gold BD, Heyman MB, Baldassano RN, Winter HS. Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics. J Pediatr Gastroenterol Nutr. 2008 Feb; 46(2):164-71.
    View in: PubMed
  39. Perrin JM, Romm D, Bloom SR, Homer CJ, Kuhlthau KA, Cooley C, Duncan P, Roberts R, Sloyer P, Wells N, Newacheck P. A family-centered, community-based system of services for children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007 Oct; 161(10):933-6.
    View in: PubMed
  40. Hill KS, Freeman LC, Yucel RM, Kuhlthau KA. Unmet need among children with special health care needs in Massachusetts. Matern Child Health J. 2008 Sep; 12(5):650-61.
    View in: PubMed
  41. Perrin JM, Fluet CF, Honberg L, Anderson B, Wells N, Epstein S, Allen D, Tobias C, Kuhlthau KA. Benefits for employees with children with special needs: findings from the collaborative employee benefit study. Health Aff (Millwood). 2007 Jul-Aug; 26(4):1096-103.
    View in: PubMed
  42. Witt WP, Fortuna L, Wu E, Kahn RS, Winickoff JP, Pirraglia PA, Ferris TG, Kuhlthau K. Children's use of motor vehicle restraints: maternal psychological distress, maternal motor vehicle restraint practices, and sociodemographics. Ambul Pediatr. 2006 May-Jun; 6(3):145-51.
    View in: PubMed
  43. Ferris TG, Kuhlthau K, Ausiello J, Perrin J, Kahn R. Are minority children the last to benefit from a new technology? Technology diffusion and inhaled corticosteriods for asthma. Med Care. 2006 Jan; 44(1):81-6.
    View in: PubMed
  44. Kuhlthau K, Ferris TG, Davis RB, Perrin JM, Iezzoni LI. Pharmacy-and diagnosis-based risk adjustment for children with Medicaid. Med Care. 2005 Nov; 43(11):1155-9.
    View in: PubMed
  45. Blumenthal D, Weissman JS, Wachterman M, Weil E, Stafford RS, Perrin JM, Ferris TG, Kuhlthau K, Kaushal R, Iezzoni LI. The who, what, and why of risk adjustment: a technology on the cusp of adoption. J Health Polit Policy Law. 2005 Jun; 30(3):453-73.
    View in: PubMed
  46. Kuhlthau K, Hill KS, Yucel R, Perrin JM. Financial burden for families of children with special health care needs. Matern Child Health J. 2005 Jun; 9(2):207-18.
    View in: PubMed
  47. Perrin JM, Fluet C, Kuhlthau KA, Anderson B, Wells N, Epstein S, Allen D, Tobias C. Benefits for employees with children with ADHD: findings from the Collaborative Employee Benefit Study. J Dev Behav Pediatr. 2005 Feb; 26(1):3-8.
    View in: PubMed
  48. Kuhlthau K, Nyman RM, Ferris TG, Beal AC, Perrin JM. Correlates of use of specialty care. Pediatrics. 2004 Mar; 113(3 Pt 1):e249-55.
    View in: PubMed
  49. Kuhlthau K, Ferris TG, Iezzoni LI. Risk adjustment for pediatric quality indicators. Pediatrics. 2004 Jan; 113(1 Pt 2):210-6.
    View in: PubMed
  50. Beal AC, Kuhlthau K, Perrin JM. Breastfeeding advice given to African American and white women by physicians and WIC counselors. Public Health Rep. 2003 Jul-Aug; 118(4):368-76.
    View in: PubMed
  51. Perrin JM, Kuhlthau KA, Gortmaker SL, Beal AC, Ferris TG. Generalist and subspecialist care for children with chronic conditions. Ambul Pediatr. 2002 Nov-Dec; 2(6):462-9.
    View in: PubMed
  52. Kuhlthau KA, Beal AC, Ferris TG, Perrin JM. Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center. Ambul Pediatr. 2002 Jan-Feb; 2(1):58-62.
    View in: PubMed
  53. Kuhlthau KA, Perrin JM. Child health status and parental employment. Arch Pediatr Adolesc Med. 2001 Dec; 155(12):1346-50.
    View in: PubMed
  54. Kuhlthau K, Ferris TG, Beal AC, Gortmaker SL, Perrin JM. Who cares for medicaid-enrolled children with chronic conditions? Pediatrics. 2001 Oct; 108(4):906-12.
    View in: PubMed
  55. Ferris TG, Kuhlthau K. Why should pediatricians be concerned about risk adjustment? Ambul Pediatr. 2001 Jul-Aug; 1(4):225-6.
    View in: PubMed
  56. Cooper WO, Kuhlthau K. Evaluating medicaid managed care programs for children. Ambul Pediatr. 2001 Mar-Apr; 1(2):112-6.
    View in: PubMed
  57. Ettner SL, Kuhlthau K, McLaughlin TJ, Perrin JM, Gortmaker SL. Impact of expanding SSI on Medicaid expenditures of disabled children. Health Care Financ Rev. 2000; 21(3):185-201.
    View in: PubMed
  58. Thyen U, Kuhlthau K, Perrin JM. Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics. 1999 Jun; 103(6 Pt 1):1235-42.
    View in: PubMed
  59. Perrin JM, Kuhlthau K, McLaughlin TJ, Ettner SL, Gortmaker SL. Changing patterns of conditions among children receiving Supplemental Security Income disability benefits. Arch Pediatr Adolesc Med. 1999 Jan; 153(1):80-4.
    View in: PubMed
  60. Kuhlthau K, Perrin JM, Ettner SL, McLaughlin TJ, Gortmaker SL. High-expenditure children with Supplemental Security Income. Pediatrics. 1998 Sep; 102(3 Pt 1):610-5.
    View in: PubMed
  61. Kuhlthau K, Walker DK, Perrin JM, Bauman L, Gortmaker SL, Newacheck PW, Stein RE. Assessing managed care for children with chronic conditions. Health Aff (Millwood). 1998 Jul-Aug; 17(4):42-52.
    View in: PubMed
  62. Perrin JM, Ettner SL, McLaughlin TJ, Gortmaker SL, Bloom SR, Kuhlthau K. State variations in supplemental security income enrollment for children and adolescents. Am J Public Health. 1998 Jun; 88(6):928-31.
    View in: PubMed
  63. Perrin JM, Kuhlthau K, Walker DK, Stein RE, Newacheck PW, Gortmaker SL. Monitoring health care for children with chronic conditions in a managed care environment. Matern Child Health J. 1997 Mar; 1(1):15-23.
    View in: PubMed
  64. Newacheck PW, Stein RE, Walker DK, Gortmaker SL, Kuhlthau K, Perrin JM. Monitoring and evaluating managed care for children with chronic illnesses and disabilities. Pediatrics. 1996 Nov; 98(5):952-8.
    View in: PubMed
  65. Howland J, Mangione TW, Kuhlthau K, Bell N, Heeren T, Lee M, Levine S. Work-site variation in managerial drinking. Addiction. 1996 Jul; 91(7):1007-17.
    View in: PubMed
  66. Mason KO, Kuhlthau K. The perceived impact of child care costs on women's labor supply and fertility. Demography. 1992 Nov; 29(4):523-43.
    View in: PubMed
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