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Steven Joffe, M.D.

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Title
Assistant Professor of Pediatrics
Institution
Dana-Farber Cancer Institute
Department
Pediatrics
Address
Dana Farber Cancer Institute
454 Brk Suite 21
44 Binney St
Boston, MA 02115
Telephone
617/632-5295
Fax
617/632-2270
Email
Email Address
Publications
1. Escobar GJ, Joffe S, Gardner MN, Armstrong MA, Folck BF, Carpenter DM. Rehospitalization in the first two weeks after discharge from the neonatal intensive care unit. Pediatrics. 1999 Jul; 104(1):e2.
2. Joffe S, Ray GT, Escobar GJ, Black SB, Lieu TA. Cost-effectiveness of respiratory syncytial virus prophylaxis among preterm infants. Pediatrics. 1999 Sep; 104(3 Pt 1):419-27.
3. Joffe S, Escobar GJ, Black SB, Armstrong MA, Lieu TA. Rehospitalization for respiratory syncytial virus among premature infants. Pediatrics. 1999 Oct; 104(4 Pt 1):894-9.
4. Joffe S, Lieu TA, Escobar GJ. The critical role of population-based epidemiology in cost-effectiveness research. Pediatrics. 2000 Apr; 105(4 Pt 1):862-3.
5. Joffe S, Cook EF, Cleary PD, Clark JW, Weeks JC. Quality of informed consent: a new measure of understanding among research subjects. J Natl Cancer Inst. 2001 Jan 17; 93(2):139-47.
6. Higuchi LM, Joffe S, Neufeld EJ, Weisdorf S, Rosh J, Murch S, Devenyi A, Thompson JF, Lewis JD, Bousvaros A. Inflammatory bowel disease associated with immune thrombocytopenic purpura in children. J Pediatr Gastroenterol Nutr. 2001 Nov; 33(5):582-7.
7. Joffe S, Cook EF, Cleary PD, Clark JW, Weeks JC. Quality of informed consent in cancer clinical trials: a cross-sectional survey. Lancet. 2001 Nov 24; 358(9295):1772-7.
8. Steinkamp M, Geva A, Joffe S, Lapp CN, Neufeld EJ. Chronic disseminated intravascular coagulation and childhood-onset skin necrosis resulting from homozygosity for a protein C Gla domain mutation, Arg15Trp. J Pediatr Hematol Oncol. 2002 Nov; 24(8):685-8.
9. Joffe S, Weeks JC. Views of American oncologists about the purposes of clinical trials. J Natl Cancer Inst. 2002 Dec 18; 94(24):1847-53.
10. Emanuel EJ, Joffe S. Ethics in oncology. Cancer Medicine. 2003; 1145-63.
11. Joffe S, Cook EF, Clark JW, Weeks JC. Altruism among participants in cancer clinical trials. American Society of Clinical Oncology Annual Meeting. 2003.
12. Joffe S. Rethink "affirmative agreement," but abandon "assent". Am J Bioeth. 2003; 3(4):9-11.
13. Joffe S, Manocchia M, Weeks JC, Cleary PD. What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics. J Med Ethics. 2003 Apr; 29(2):103-8.
14. Joffe S. Public dialogue and the boundaries of moral community. J Clin Ethics. 2003 Spring-Summer; 14(1-2):101-8.
15. Peppercorn JM, Weeks JC, Cook EF, Joffe S. Comparison of outcomes in cancer patients treated within and outside clinical trials: conceptual framework and structured review. Lancet. 2004 Jan 24; 363(9405):263-70.
16. Partridge AH, Hackett N, Blood E, Gelman R, Joffe S, Bauer-Wu S, Knudsen K, Emmons K, Collyar D, Schilsky RL, Winer EP. Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants. J Natl Cancer Inst. 2004 Apr 21; 96(8):629-32.
17. Joffe S, Harrington DP, George SL, Emanuel EJ, Budzinski LA, Weeks JC. Satisfaction of the uncertainty principle in cancer clinical trials: retrospective cohort analysis. BMJ. 2004 Jun 19; 328(7454):1463.
18. Lee SJ, Joffe S, Kim HT, Socie G, Gilman AL, Wingard JR, Horowitz MM, Cella D, Syrjala KL. Physicians' attitudes about quality-of-life issues in hematopoietic stem cell transplantation. Blood. 2004 Oct 1; 104(7):2194-200.
19. Joffe S, Simon C. Informed consent from the doctor? Hastings Cent Rep. 2004 Jul-Aug; 34(4):12; discussion 12-3.
20. del Carmen MG, Joffe S. Informed consent for medical treatment and research: a review. Oncologist. 2005 Sep; 10(8):636-41.
21. Little MO, Moczynski WV, Richardson PG, Joffe S. Dana-Farber Cancer Institute Ethics Rounds: Life-threatening illness and the desire to adopt. Kennedy Inst Ethics J. 2005; 15(4):385-93.
22. Emanuel EJ, Joffe S. Ethics in Oncology. Cancer Medicine. 2006; 998-1014.
23. Joffe S, Schumacher M, Clark JW, Weeks JC. Preferences for and expectations about experimental therapy among participants in randomized trials. American Society of Clinical Oncology Annual Meeting. 2006.
24. Joffe S, Truog RD, Shurin S, Emanuel EJ. Ethical Considerations in Pediatric Oncology. Principles and Practice of Pediatric Oncology. 2006; 1466-89.
25. Abel GA, Penson RT, Joffe S, Schapira L, Chabner BA, Lynch TJ. Direct-to-consumer advertising in oncology. Oncologist. 2006 Feb; 11(2):217-26.
26. Joffe S, Miller FG. Rethinking risk-benefit assessment for phase I cancer trials. J Clin Oncol. 2006 Jul 1; 24(19):2987-90.
27. Ungar D, Joffe S, Kodish E. Children are not small adults: documentation of assent for research involving children. J Pediatr. 2006 Jul; 149(1 Suppl):S31-3.
28. Joffe S. Altruistic discourse and therapeutic misconception in research informed consent. Am J Bioeth. 2006 Sep-Oct; 6(5):53-4.
29. Joffe S. Altruistic discourse and therapeutic misconception in research informed consent. Am J Bioethics. 2006; 6(5):53-4.
30. Hampson LA, Agrawal M, Joffe S, Gross CP, Verter J, Emanuel EJ. Patients' views on financial conflicts of interest in cancer research trials. N Engl J Med. 2006; 355(22):2330-7.
31. Joffe S, Fernandez CV, Pentz RD, Ungar DR, Mathew NA, Turner CW, Alessandri AJ, Woodman CL, Singer DA, Kodish E. Involving children with cancer in decision-making about research participation. J Pediatr. 2006 Dec; 149(6):862-868.
32. Joffe S, Fernandez CV, Pentz RD, Ungar DR, Mathew NA, Turner CW, Alessandri AJ, Woodman CL, Singer DA, Kodish E. Involving children in decision-making about research participation. J Pediatr. 2006; 149(6):862-8.
33. Miller FG, Joffe S. Evaluating the therapeutic misconception. Kennedy Inst Ethics J. 2006; 16(4):353-66.
34. Schneider KA, Chittenden AB, Branda KJ, Keenan MA, Joffe S, Patenaude AF, Reynolds H, Dent K, Eubanks S, Goldman J, Leroy B, Warren NS, Taylor K, Vockley CW, Garber JE. Ethical issues in cancer genetics: I 1) whose information is it? J Genet Couns. 2006 Dec; 15(6):491-503.
35. Schneider KA, Chittenden AB, Branda KJ, Branda KJ, Keenan MA, Joffe S, Patenaude AF, Reynolds H, Dent K, Eubanks S, Goldman J, Leroy B, Warren NS, Taylor K, Vockley CW, Garber JE. Ethical issues in cancer genetics: 1) whose information is it?. J Genet Couns. 2006; 15(6):491-503.
36. Pentz RD, Joffe S, Emanuel EJ, Schnipper LE, Haskell CM, Tannock IF. ASCO Core Values. J Clin Oncol. 2006; 24(36):5780-2.
37. Joffe S, Mello MM, Cook EF, Lee SJ. Advance care planning in patients undergoing hematopoietic cell transplantation. Biol Blood Marrow Transplant. 2007 Jan; 13(1):65-73.
38. Hitchcock-Bryan S, Hoffner B, Joffe S, Powell M, Parker C, Wolanski A, Eder JP, Shapiro GI, Bauer-Wu S. Entering a Clinical Trial: Is It Right For You?- a randomized study of the clinical trials video and its impact on the informed consent process. American Society of Clinical Oncology Annual Meeting. 2007.
39. Mello MM, Joffe S. Compact versus contract: an ethical and legal analysis of industry sponsors' obligations to research subjects. N Engl J Med. 2007; 356(26):2737-43.
40. Mello MM, Joffe S. Compact versus contract--industry sponsors' obligations to their research subjects. N Engl J Med. 2007 Jun 28; 356(26):2737-43.
41. Hampson LA, Joffe S, Fowler R, Verter J, and Emanuel EJ. The frequency, type, and monetary value of financial conflicts of interest in cancer clinical research. J Clin Oncol. 2007; 25(24):3609-14.
42. Henderson G, Churchill L, Davis A, Easter M, Grady C, Joffe S, Kass N, King NM, Lidz C, Miller FG, Nelson D, Peppercorn J, Rothschild B, Sankar P, Wilfond B, Zimmer C. Clinical trials and medical care: defining the therapeutic misconception. PLoS Med. 2007; 4(11):1735-8.
43. Joffe S, Truog RD. Equipoise and Randomization. Oxford Textbook of Research Ethics, eds. Emanuel EJ, Grady C, Crouch RA, Lie RK, Miller FG, Wendler D. 2008; 245-60.
44. Miller FG, Mello MM, Joffe S. Incidental findings in human subjects research: What do investigators owe research participants?. J Law Med Ethics . 2008; 36(2):271-9.
45. Joffe S, Miller FG. Bench to bedside: mapping the moral terrain of clinical research. Hastings Cent Rep. 2008; 32(2):30-42.
46. Kesselheim JC, Joffe S. The challenge of research on ethics education. Am J Bioeth. 2008 Apr; 8(4):12-3; author reply W1-2.
47. Kesselheim JC, Joffe S. The challenge of research on ethics education. Am J Bioeth. 2008; 8(4):12-3.
48. Kesselheim JC, Johnson J, Joffe S. Pediatricians' reports of their education in ethics. Arch Pediatr Adolesc Med. 2008 Apr; 162(4):368-73.
49. Lee SJ, Joffe S, Artz AS, Champlin RE, Davies SM, Jagasia M, Kernan NA, Loberiza FR, Soiffer RJ, Eapen M. Individual physician practice variation in hematopoietic cell transplantation. J Clin Oncol. 2008; 26(13):2162-70.
50. Rose SL, Najita J, Krzyzanowska MK, Joffe S. Authorship roles of oncology investigators with or without financial relationships to industry. American Society of Clinical Oncology Annual Meeting. 2008.
51. Mack JW, Joffe S, Hilden JM, Watterson J, Moore C, Weeks JC, Wolfe J. Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol. 2008 Oct 10; 26(29):4759-64.
52. Lee SJ, Astigarraga CC, Eapen M, Artz AS, Davies SM, Champlin R, Jagasia M, Kernan NA, Loberiza FR, Bevans M, Soiffer RJ, Joffe S. Variation in supportive care practices in hematopoietic cell transplantation. Biol Blood Marrow Transplant (in press). 2008.
53. Lipton J, Joffe S, Ullrich NJ. CNS relapse of myelogenous leukemia masquerading as pseudotumor cerebri. Pediatr Neurol (in press). 2008.
54. Miller FG, Joffe S. Benefit in phase 1 oncology trials: therapeutic misconception or reasonable treatment option?. Clinical Trials (in press). 2008.
55. Mack JW, Joffe S, Hilden JM, Watterson J, Moore C, Weeks JC, Wolfe J. Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol (in press). 2008.
56. Peppercorn JM, Burstein H, Miller FG, Winer E, Joffe S. Self-reported practices and attitudes of U.S. oncologists regarding off-protocol therapy. J Clin Oncol (in press). 2008.
57. Stroustrup Smith A, Kornetsky S, Joffe S. Knowledge of regulations governing pediatric research among members of institutional review boards that evaluate pediatric protocols: a pilot study. IRB (in press). 2008.
58. Thornley I, Eapen M, Sung L, Lee SJ, Davies SM, Joffe S. Private cord blood banking: experiences and views of pediatric hematopoietic cell transplantation physicians. Pediatrics (in press). 2009.
 
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